Sleeping and sitting too much, ugh!

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BFogg
Regular Member


Date Joined Feb 2014
Total Posts : 56
   Posted 8/3/2014 11:10 PM (GMT -6)   
I used to never sit and hardly ever got any sleep. I have two children one is 3 the other is turning two so sleep was not something I was familiar with. Now, I sleep for 12+ hours and still wake up feeling like I haven't slept at all. I'm constantly sitting around and am really worried that laying about will make my health worse. I'm worried about getting a blood clot from it. So many people are dying from blood clots who actually exercise, and I hardly move around! I try to move around as much as possible but I get really bad leg pains and every time I do I think, ''what if it's a blood clot?!"

Does anyone else worry about this? Is there somethini can do to maybe prevent this? My blood pressure has been around 102/60 which for me is not good. I'm used to being around 120/78 and am really feeling dizzy and want to move even less! Just really worried about this. Any input would be appreciated. Thanks!
Diagnosed 2014 Hypothyroidism and Lupus
Currently only taking 0.025mg of Levothyroxine
100mg of Vitamin B12 & 250mg of Magnesium
New to it all and completely freaked out!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/3/2014 11:44 PM (GMT -6)   
Sounds like you have severe fatigue going on. I need ten hours of sleep to function. There are some days I don't want to move either. The blood pressure doesn't sound good though. Are you on meds for this?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

BFogg
Regular Member


Date Joined Feb 2014
Total Posts : 56
   Posted 8/4/2014 9:40 AM (GMT -6)   
On medication for my blood pressure? Nope
Diagnosed 2014 Hypothyroidism and Lupus
Currently only taking 0.025mg of Levothyroxine
100mg of Vitamin B12 & 250mg of Magnesium
New to it all and completely freaked out!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/4/2014 3:39 PM (GMT -6)   
I wonder if they have medicine to raise your blood pressure?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

BFogg
Regular Member


Date Joined Feb 2014
Total Posts : 56
   Posted 8/4/2014 5:35 PM (GMT -6)   
I'm not sure, the last time I mentioned it he said to ask my cardiologist...
Diagnosed 2014 Hypothyroidism and Lupus
Currently only taking 0.025mg of Levothyroxine
100mg of Vitamin B12 & 250mg of Magnesium
New to it all and completely freaked out!

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/5/2014 9:25 PM (GMT -6)   
It's sounding like the fatigue bug has hit you really hard. I suffer from extreme fatigue too. In the beginning my Doctor gave me a drug that is used on folks who have narcolepsy and it helps keep them awake through out the day. Well it helped me for about the first 3 months and I was back to sleeping close to 16 hours daily.

Now, I have only one child and she was 8 years old when my official DX came in. So, she could understand at that time I needed to sleep and rest. I found that pushing myself to get up and do things actually can make my health worse. REST is a huge thing with lupus, we need lots of it, as well, as a healthy diet, light exercise, and most important listen to our bodies. When it tells us to stop, we should stop period.

I know you really didn't want to hear that but, until you get your lupus under control those are things you need to do. Remember lupus patients vary from mild to severe. Some patient never need medication and others it looks like a hospital room.

As for the blood clots, I'd try not to worry to much about them if your standing up, sitting and walking around then you should do fine. I managed to get two different blood clots in areas that are so rare that my Doctors can not believe it. Most folks get them in their lungs (PE) or legs (DVT). Well, my first one was in my IVC (inferior vena cava) this is a very important area it carries blood either away or to the heart. My second one was in the SVC (superior vena cava) this one is right in the middle of my chest.

I had no idea I had these blood clots and I'll be on blood thinners the rest of my life. The one in my chest was found when they went to put my mediport into me.

I know everything is overwhelming in the beginning and you have tons of questions, please ask away there are lots of great folks here to answer your questions. I've had lupus for 27 years and have been on steroids every day for over 14 years now.

Hang in there and come and vent anytime you need to, or just ask for help with questions. Take care and I hope that you get to start feeling better really soon. Oh on a side note, my BP normally runs about 90/60 sometimes lower. I on occasion get some dizziness but overall my body seems to have adjusted to the lower reading.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.
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