Peripheral Neuropathy

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NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/5/2014 3:13 PM (GMT -6)   
Hi,

I haven't posted here in awhile. Yesterday I was diagnosed with Peripheral Neuropathy. My rheumy said it could be part of Lupus but didn't give me anything for it. My primary doctor gave me medicine but said he had never heard Lupus causing it.

Any one have any experience with this?

Thanks in advance,
Mary Ann eyes eyes

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 8/5/2014 5:25 PM (GMT -6)   
Yes, of course Lupus can cause it!!! What planet is your rheumy from???!!!!

Lupus => Extra, unexplained, inflammation. When that inflammation gets to the nerves => neuropathy!!!

For some people it presents as itching, tingling, or pain. I most often have it in my fingers and toes. When my inflammation lessons, so do the neuropathy symptoms. The med that is most effective is ... surprise! The med that decreases the inflammation! Prednisone.

What did your Dr give you? If he's trying to treat it some other way without addressing the inflammation (inflammation can be verified by blood markers), I'll be surprised if you have any relief.

Best wishes...
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/5/2014 9:40 PM (GMT -6)   
Mary Ann:

Sorry to hear that you're having issues with neuropathy, that's a real bummer. I noticed that my toes feel numb on my foot that was operated on. I'm really hoping that it's from the surgery and not neuropathy. I understand that it can be very painful and hard to deal with.

Like Lynnwood said unless they are taking care of your inflammation I don't think anything will work in resolving the issue. The blood tests that are used to test for inflammation are the Sed Rate and CRP (C-reactive protein). If these are positive it indicates that you're having inflammation in your body.

I know in my case, my SED Rate is rarely positive, however, my CRP is always thru the roof. My lupus just doesn't respond well to treatment, unless I'm on major doses of prednisone. I have inflammation all the time at 20mgs of pred daily. Only when I get up around 30 or higher does my CRP begin to drop.

I hope the medication that your Dr gave you helps you and that you start feeling better really soon.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/7/2014 5:02 PM (GMT -6)   
My blood markers are negative for inflammation right now. However I do take Mobic which is an anti-inflammatory. My dr. gave me gabapentin. I took it last night and it took awhile but did give me some relief. It is very painful when it flairs up. ON top of that I think I have a stress fracture on the top of my right foot. I felt it crack and now it is swollen and painful. Oi vey :-)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/7/2014 8:54 PM (GMT -6)   
Ouch, Nanabee. You better get that foot checked out.

I love my gabapentin. Before I started it the weight of my bedsheet hurt my toes. It doesn't hurt now.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 8/9/2014 12:22 PM (GMT -6)   
My dr did a blood test and it came back neg. for lupus but I do have peripheral neuropathy. Can you have lupus and dr not know. I take gapapentin and have for 3 years I love it. I started taking it due to arms burning so bad that I felt like I had a sunburn that I couldn't get rid of.
I have rashes that shoe up on my stomach and legs for no reason.
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.

Contentprof
Regular Member


Date Joined May 2014
Total Posts : 412
   Posted 8/16/2014 1:30 AM (GMT -6)   
I have new prescription for gabapentin for neuropathy (part of adverse reaction w/lupus to remicade), but I am afraid to take it given common side effects of brain fog etc in the morning. Life is challenging enough managing all of these medical problems. I feel like I need my mind to be sharp. But I'm uncomfortable with numbness & tingling & dropping things. Should I just try it?
55 yrs old. UC >10 yrs after proctitus. For flares failed prednisone, cortenemas, mesalamines (hives, fever), 6mp (fever), Uceris. Remicade (began 12/13) & severe flare vanished. Update 6/14: severe joint pains (migrating); prednisone 40 mg; stopped remicade. Dx: Adverse reaction to Anti-TNFs, inc lupus symptoms, peripheral neuropathy; + ANA, + p-ANCA, high anti-dsDNA titers. Next meds for UC?

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/16/2014 12:39 PM (GMT -6)   
Well, I have been taking the gabapentin for about a week now. It really has helped me. The only problem is if I take it during the day I get really dizzy. Since I am home alone during the day that isn't a good thing. So I have just been taking it at night. I don't really feel any brain fog symptoms or extra tiredness from taking it.

I am glad that the buzzing and tingling has slowed down. Glad I am taking it.

Mary Ann :-)

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 8/16/2014 3:46 PM (GMT -6)   
NanaBee the side affects will ease up I have to take it 3 times a day and 2 pills at a time I am on 1800 mgs. It does help with the neuropathy some. Heck I wouldn't know if meds was causing the fog or fm.
DX Fibro 12/31/07   Guess I can put the rest dx
PSTD  Bi Polar 2/04  Depression most of my life  IBS
RX Amitriptylin 25mg
 
God gives doesn't give us more than we can handle. So this too shall pass.

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 8/19/2014 5:24 PM (GMT -6)   
LadyBug,

I am glad to know the symptoms ease up. I have been afraid to take it but the buzzing and tingling is driving me nuts during the day. I will start taking it more regularly and see how it goes. I am sorry you have to take so much of it. I hate taking meds and just had to add 4 more to my regimen. Ugh!!
MCTD, Fibromyalgia, Pulmonary Stenosis, High Blood Pressure, IBS, Degenerative Disc Disease, Depression, Anxiety

"No matter what happens, God is in control. He is God, I am not, what a relief!"

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/19/2014 8:31 PM (GMT -6)   
I'm curious...
A few weeks ago I went on a long car ride and my feet was swollen for a week after. They look normal now, but I have a strange feeling in my left foot. It feels like touch is "muffled" on the top, but at the same time the bottom of my foot is painful on the side edge. My right sock felt like I had a sock full of sand, too. Is that signs of possible neuropathy?

I see my new rheumy in a couple of weeks.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 8/20/2014 5:57 AM (GMT -6)   
It could be Joy, best bring it up at your appointment. I think neuropathy is pretty common with lupus. I have it too but haven't been taking anything for it yet.

I dropped my whole brand new fancy coffee my boss bought me yesterday at break. I felt like that kid who drops their ice cream cone without even getting a lick of it. How disappointing! My grip is getting bad :(
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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