Yep, I'd say you've caught up with me. I don't like thinking I'm one of the "sickest" on the forum it's hard to accept at times. I know how you're feeling right now, it's like so overwhelming. (((hugs))) I'm sorry that you went through all of this and now are having such a difficult time with your memory.
I have noticed that mine is getting much worse, and yet my family is refusing to accept it may be my lupus. They like to blame my pain medications. Even though, I do take my long acting medication every 8 hours like I should. However, my short acting stuff which I can have every 4 hours, I some days I really stretch out the time. If I'm going to have to drive my car I NEVER take my short acting pain medication until I'm home for the day.
My family has really made me feel bad about taking something on a daily basis for pain. I've been called an addict by my spouse and I guess my daughter really has issues with it, not that she's told me this. Of course, hubby's sister is a Doctor and she doesn't believe in pain management, so she's bugging him all the time about it. She's so against it, she elected not to get her DEA license and doesn't prescribe pain medications to any patients that come to see her.
I think though that my brain is starting to slow down, I've notice over like the past 3 three, maybe more I'm having a lot of dizzy spells, and I've noticed that my balance and ability to walk is off. I seem to stumble more into walls and such, of course, I hear "how much pain medication did you take" and I may not have taken anything. Again, I've suggested it's my lupus and he blows it off.
I also notice that my feet feel numb and my right arm is very weak, are you having any of these types of symptoms? I do know that my CO2 level is ALWAYS elevated now, ever since I had my near death experience. Yet, no Doctor seems worried that it's high, is yours still elevated? Sorry to bomb you with questions, but I've never talked with someone who had elevated CO2 levels.
Sweetie try not to get to upset about the driving, I understand it's a loss of your independence. However, you don't want to have an accident and kill yourself, or anyone else. I know you and you'd never forgive yourself if you hurt someone else.
You take care and come and post when you can. I'm gonna go to bed this being up at almost 2 am is getting really old I guess. I'll keep checking for updates and you hang in there, I'm pulling for you and you know I'm always here if you need to call me.
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.