Sorry that you find yourself in this position but glad that you have discovered the reason things are not getting any better. (At least I imagine that a shrinking brain cannot be re-inflated.)
I know what it's like to have much more cognitive difficulty than the average "lupus fog" and the frustration that comes from people saying it's normal (or at least normal for lupus). I was so relieved when my neuropsych testing showed tangible changes in my thinking processes & reactions. Not that I liked the results (sort version - "you've lost 15-20 IQ points"), but at least something was true and measurable and not my imagination.
I too was unable to drive or complete a sentence or carry on a conversation or even follow a stupid 20-minute sitcom. Thankfully when my Lupus went "quiet" my cognition started to improve and I feel like I'm at least 90% of what I was (my guess was about
65-70% normal at one point.) I guess I could try to get some tests done to measure recovery but I'm not really sure what the point would be.
The cool thing about
the brain is that we can create new circuits and essentially re-wire ourselves. I hope that the Shepard Center can help with brain exercises and techniques to overcome some of these issues.
Glad to see you posting again!!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde