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aerofare
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/11/2014 5:24 PM (GMT -6)   
Hello everybody!

Wish we were "meeting" under different circumstances.

I was diagnosed about 6 months ago with "undifferentiated diffuse autoimmune disorder" after several years of odd symptoms and feeling miserable (I feel lupus will eventually be the diagnosis, but the rheumy isn't ready to "commit" to that just yet). I started plaquenil at that time and have had enormous relief from my joint pain.

I do have a question for those who have a better understanding of their symptoms while dealing with this disease. I've heard that low-grade fevers are common in patients with lupus. about a year ago, before I was aware of that symptom, for about 2 weeks straight, I would wake up every night drenched in sweat. I never even thought to take my temp during that time because I was so miserable from head to toe that I didn't suspect a fever. Here is the situation - I had surgery last Monday (lap assisted vaginal hysterectomy - removed everything except my ovaries). On Friday night/Saturday morning (about 3 a.m.) I woke up drenched in sweat. Until that point, I'd been feeling fine. As Saturday progressed, I felt worse. Starting vomiting, getting chills, etc. I took my temp to find it had reached 99.9 (and my normal is low 97). I ended up going to the ER Saturday afternoon due to a bunch of symptoms and feeling rotten in general. Results were inconclusive. My white count is elevated, indicating an infection, but they don't know where, why, or how bad. I started cipro (antibiotic) Saturday night.

Now here is where is starts to get weird.....

I woke up Sat night/Sun morning around 3 a.m. drenched in sweat. Took my temp and it was normal. Great, my fever went away. Well, by early Sunday afternoon, I started feeling feverish again. My temp slowly crept up until it hit around 99.9 by the time I went to bed. I work up at 3 a.m. drenched in sweat and my temp was again normal. That takes us to today. I've been fine all day (no fever). Around 4 p.m., my temp starting to slowly climb again. I'm now sitting at 99.4....

Why is my temp coming and going like this??? If it was related to the infection or complication of the surgery, it would just stay, right? Does anybody with lupus have a fever that only comes around in the evening? This makes me wonder if I had been running fevers last year, too, and just wasn't aware. I'm not one to sweat excessively, so for me to wake up soaking wet, there is something strange going on. I'd love any feedback I can get about this.

I am seeing my surgeon in the morning, of course, but he's OB/GYN, so I'm not sure how much he knows about lupus. I'd call my rheumy, but he seems to discount most of the symptoms I have (doesn't believe they are related to the disease at all). I've found that those with the condition seem to have the most knowledge/insight.

Thanks for all your help!!!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/11/2014 10:07 PM (GMT -6)   
It might just be an infection since your white count was up.

I don't think our white count changes with our fevers. My normal is 96.7. If it gets to 99 I'm very sick.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/11/2014 11:49 PM (GMT -6)   
Hi I'm sorry to hear of your DX and your recent surgery (((hugs))). I've had lupus almost 27 years now and I have been very, very, sick with my disease.

It seems that a lot to most of us run a temp in the lower number on average. So, when we begin to run a fever 99.9 or 100.4 feels like we're burning up. I had a terrible infection over Christmas and even though, according to the resident in the ICU, a fever is 101.1, my temp was up to 100.9 and I thought I was dying.

I'm going to go out on a limb and guess that your temperature coming and going is due to your infection that you have. I know with me when I had my last infection I did the exact thing. It's also very common in a lot of cases, to run a temperature at night. We seem to feel worse at night and run a temperature.

I'd recommend that if you're not any better in another day, I'd at least give your Doctor a call. I hope that you start to feel better really soon. Welcome to the forum and please come bask and let us know how you're doing.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 8/12/2014 5:40 AM (GMT -6)   
Welcome Aerofare :)

I read somewhere that a trauma such as surgery etc can cause lupus to flare. When I'm flaring (even mildly) I tend to get a fever in the evenings. As Barbara and Joy said, my temp is also usually low so even a mild fever has me feeling I'm burning up. Night sweats too.

My white count is always high and has been every time I have ever had my blood tested since in my teens. It has my doctors baffled and unfortunately I can't help you there. Usually it means infection.

When you see the OB/GYN you may want to ask if they gave you iv antibiotics for the surgery. It's a usual practice and may explain why you were doing ok for the days just following the surgery. I would tell the dr what you have been experiencing and see what they say. It doesn't hurt to try and maybe they have some knowledge of autoimmune stuff.

I know it is daunting to tell the rheumy things when they seem disinterested but sometimes they surprise us. I think this warrants a call to the rheumy's office. Or even possibly your GP if they are easier to talk to.

Good luck and I hope you are feeling better soon!
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss
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