hydroxychloroquine injection

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Kelsbels
New Member


Date Joined Aug 2014
Total Posts : 8
   Posted 8/21/2014 1:13 PM (GMT -6)   
I am wondering if anyone else in the UK has been given a hydroxychloroquine injection before starting on meds? Rheumy said it would get into system quicker to see if it works for me for lupus symptoms. Problem is I feel it's working some days and then not other (tiredness hits again aching joints etc etc). Since having the injection tiredness and fog lifted for 2 days back again for 1 day back off again and so on. Is this normal and also had palpitations and ulcers in throat and mouth (no pain from them). I am a newby on here and have searched the net for info on the injection even asked at work (work in pharmacy) and nothing only on oral drugs.

Thank you in advance.

Lynnwood
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Date Joined May 2005
Total Posts : 7723
   Posted 8/21/2014 1:24 PM (GMT -6)   
Very interesting. I have had Lupus since 2002 and been active in this forum most of that time...while most of us are on Plaquenil (hydroxychloroquine) this is the first time I've ever run across mention of it as an injection.

Is it possible that you've confused a steroid injection (Prednisone) with Plaquenil? It's easy to mix up the two.

Quite interested to see what comes of this!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Kelsbels
New Member


Date Joined Aug 2014
Total Posts : 8
   Posted 8/21/2014 1:34 PM (GMT -6)   
Almost sure she said it was a hydroxychloroquine injection as she said it would help with tiredness and then start me on meds when go back in 6 weeks if all ok. Abit concerned they gave me no paperwork on whatever I was injected with - thought they would of gave me a info leaflet of some sort? Don't know if the ulcers n palpitations from the injection or a flare- very confused!

Kelsbels
New Member


Date Joined Aug 2014
Total Posts : 8
   Posted 8/22/2014 11:08 AM (GMT -6)   
Just telephoned hospital and asked what the injection was - you were right! It was a Medrone Depot. Could this work intermittently until in my system. Not sure they should be injecting people without giving any information leaflets? She said if the depot works they will then start me on hydroxychloroquine - but does it do the same thing? Than you.

Lynnwood
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Date Joined May 2005
Total Posts : 7723
   Posted 8/22/2014 12:24 PM (GMT -6)   
Hydroxychloroquine (Plaquenil) is an anti-malarial generally considered to inhibit disease progression. It's fairly standard to be placed on this for years.

Corticosteroids (Prednisone, etc) are used to reduce inflammation and suppress activity of the immune system. Low doses are used long-term, higher doses to control flares. You should be getting regular bloodwork that includes watching your inflammation markers.

A third type of treatment is also used - Imuran, Cellcept, MTX, Benylsta, and others. This can sometimes send SLE into a "quiet" phase, but which med will work for which patient is entirely trial-and-error.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 8/22/2014 1:00:29 PM (GMT-6)


Kelsbels
New Member


Date Joined Aug 2014
Total Posts : 8
   Posted 8/22/2014 2:17 PM (GMT -6)   
Thank you for the information - docs don't give any information on what or why they prescribing drugs. Rang today for advice on side affects and answer machine­čśč

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 8/22/2014 2:43 PM (GMT -6)   
A couple of websites might help you out www.lupus.org and www.thelupussite.com
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde
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