Can I have lupus

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Aug 2014
Total Posts : 1
   Posted 8/27/2014 7:50 PM (GMT -6)   
Hi. My name is alicesha ( the name of my mother who had lupus). I have been feeling very strange for sometime. I don't know where to start or how to fit everything here so I am open to answering questions you guys may have. I am26. My mom died of lung failure and kidney failure due to lupus. She was diagnosed around my age. For years I have experience faint spells. For a few months a couple years ago chest pain was random and painful enough to stop me in my tracks, I was concerned I am be having a heart attack on different occasions because of the pain. I convince myself it was a pinched nerve. My iron levels are low and dropping. My nails have very deep white stains(all nails) and are peeling. I was told that is a sign of kidney issues. My left knee is becoming more and more uncomfortable vs pain. I have been getting random skin irritations that come at the slightest touch of literally anything even myself. They are red swollen and bumpy but disappear after a few minutes. But the last few days have bee really bad. My period was expected. I relieved all of the symptoms but I have yet to bleed. (No possible preg) I think my iron has gotten so low my body refuses to let out blood. Everyone thinks I'm imagining but I KNO WHEN SOMETHING IS WRONG. I know most will suggest to go to the doc.... I'm afraid they will find excuses to drug me... And I don't have ins yet.i was hoping to get opinions. I have to get tested I know... But plzhumor me and talk to me... Im not going crazy ... Am i

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 8/27/2014 9:24 PM (GMT -6)   
If you haven't seen a rheumatologist you should do so. Treating your lupus will also treat your kidney problems. You should also see a nephrologist if you think you have kidney involvement. Do you have any blood in your urine? Is it very frothy? That is a sign of protein in your urine (proteinuria). I had it but once treated my kidneys have been ok for the past 9 years.

Make sure all your doctors talk to each other. Don't hesitate to get a 2nd opinion particularly on treatment.

Lupus is usually treatable and most live a normal life. Some cases are more difficult to treat but the longer you wait the more difficult it is to get your immune system under control.

MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 8/27/2014 11:58 PM (GMT -6)   
A primary doctor can start off the blood work for you. A lot of doctors will take in consideration of no insurance and adjust your rates. I pay about $100 a visit at most with my doctors.
You can get some medications free through the company if you can't afford them.

I get all of my meds generic. I spend about $127 a month on about ten meds.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 11:29 PM (GMT -6)
There are a total of 3,004,970 posts in 329,182 threads.
View Active Threads

Who's Online
This forum has 161753 registered members. Please welcome our newest member, nguoivotinh1.
282 Guest(s), 8 Registered Member(s) are currently online.  Details
PDL17, pasayten, wednesday77, searching1, oregonhay, Relentlesswill, CAdogsRus, rpgdancer