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Regular Member

Date Joined Feb 2014
Total Posts : 56
   Posted 8/27/2014 8:27 PM (GMT -6)   
Normally I do really good when it comes to staying out of the sun. If I do venture out into the sun light, I normally layer up and protect my skin. Buuuuut, today I did not. My son wanted so very dearly to go outside and I knew I had to take him out because I know he actually needs it. So I put him in his wagon and took him for a thirty minute walk. The only problem? I was wearing pants, however I was wearing a tank top with no sweater, no sun screen, nothing. Zip. Nada. I felt okay for a couple hours then boom! Horrible neck aches and awful, awful head pressure along with a headache. My question is, does this happen to other people who have SLE, or is it just me? I'm trying to decipher if this is a headache caused by the sun exposure, or from something else entirely? Because it is unbearable!
Diagnosed 2014 Hypothyroidism and Lupus
Currently only taking 15mg Armour Thyroid
100mg of Vitamin B12 & 250mg of Magnesium

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 8/27/2014 8:39 PM (GMT -6)   
Yup, that happens to other people with SLE! It probably is from sun & heat exposure...unfortunately the only way to know for sure is to expose yourself again and see if the same horrible thing happens. (I don't recommend this.)

Drink lots of water, stay cool, and I hope you feel better soon!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 8/27/2014 9:18 PM (GMT -6)   
One of the most common lupus symptoms.

MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 8/27/2014 11:46 PM (GMT -6)   
Yes, I get very weak and itch like crazy too.
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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