Posted 9/9/2014 5:17 AM (GMT -7)
New member, ljardo, says
Hi everyone! I was told about this forum from my girlfriend and so far I am so happy I did. I don't quite know the etiquette yet so please feel free to tell me if I'm doing something wrong.
I was diagnosed with fibro back in 05, the Dr wasn't really sure if it was lupus but had a good feeling. So here I am, switched Dr's a couple of times and in 2010 my latest Dr has confirmed SLE Lupus and as the years have gone by everything seems to be falling apart.
I guess I was in a bit of denial seeing as the last 3 drs seemed to just want to load me up w pain meds and never sent me out to specialists. So when lupus was confirmed I definitely questioned it.
Too make it short,(if I can, lol) I now have the Lupus of course, a lot of pain just about every where, there are days i cant use my wrist, to bend, wave abd sorry but to even wioe kills me, i have arthritis in my knees, hyperthyroidism, cyst on the remaining Thyroid, that I'm finally getting the chance to take care of, due to lack of insurance. I have neuropathy, a Cecal mass/tumor in my colon, my vision is very blurry and I can't remember conversations, things I've done and lose things. I'm assuming that's the brain fog you speak of. I also have what's to be believed a mass on my lung. My liver enzymes keep shooting through the roof and have a "fatty liver" I have a right ventricle problem in my heart. The protein in my urine is extremely high. I have degenerative disc disease and of course torn and bulging discs. There is more but I'm sure I have gone on too long. But i do want to say, because of what I've read about the shrinking frontal lobe I wanted to say mine too is shrinking as of 2yrs ago and I get horrible migraines, I've never had pneumonia either. I just wanted to know if you get migraines Donna?
I also wanted to know, so that I can try and pull out of my denial stage and start acceptance, is everything I named pretty spot on w Lupus? My ANA and RA Dr's diagnoses should be proof enough for me but to hear it from you ladies that suffer w this awful disease would really help me w my struggle. I am only 39 but i feel like I am in my 80's.. I can only imagine what my life is going to be like as I get up there in age.
Thank you for reading and again any words you have would mean a lot to me. Prayers for us all.. ~Jennifer
This is a hard hand we've been dealt and it can get rough at times like you know already. I was like you....Queen of Denial. I knew something was wrong but it was hard to accept lupus.
The important thing is work with your new doctor on getting better health. Find good support. This site is good for questions, but also join a local group for the human contact. I see a psychologist who helps me with the ups and downs of dealing with a chronic illness.
Make sure to post an introduction thread so you won't get lost in this thread.Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, Allergies, and benign familia tremors
When life throws you lemons....
Pick them up and throw them right back at them! :))
Hi Joy!! Thank you so much for the warm welcome and the very helpful information, I appreciate it!
It's a very hard hand and I have been moving forward w specialist thanks to this new Dr. I def need to add a phsycologist to my group of care. As of course I am very depressed and high anxiety, don't really like to socialize out side of people I know or family, so I'm not sure about an outside group quite yet. But again thank you!
I will figure out how to do the introduction thread. But not sure how to do the line w each persons ailments and the little "pep you up quotes", but I will play around w it as I'm sure you all had to do!
So happy to be here!
Thanks again Joy!!