Looking for the train that hit me!

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acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 9/19/2014 6:03 AM (GMT -6)   
Has anyone seen the locomotive that ran over my body? I'd like some justice!

All kidding aside, (I have to laugh to keep from crying) I appear to be having one heck of a flare up beginning. In the last month I've had a uti, bronchitis (thankfully no pneumonia) and developed an ulcer from celebrex. I think it has taken it's toll and last night I started getting pain everywhere. Even my eyeballs hurt. Lying still hurts.

I see my rheumy on Thursday and I tend to not complain much. I'm trying to set my mind to express to her how things have really been and that I feel my lupus is not under control instead of my usual "things could be worse" attitude. I'm afraid that if I open the floodgates I will end up a blubbering mess in her office and they will have to call a janitor to clean me out of there.

I don't even know where to start! What do I say? Why do I freeze up when I get there? And how do I deal with this pain in the meantime? Help!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/19/2014 10:22 AM (GMT -6)   
I know what you mean. I blubber in front of my primary and wound up on paxil.

I freeze up at the doctor's too.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2608
   Posted 9/19/2014 10:24 AM (GMT -6)   
Are you sure it was a locomotive and not the steamroller that lurks in my house?

I loved your post even though I hate to hear that you're suffering. It reminded me of my parents when, in their later years, I'd take them to the doctor and when asked how she was doing, Mother would chirp, "I'm fine" even though she might have a migraine.

But it is hard to find a balance between not wanting to complain and not being totally honest. I'm sure you'll find a way, even if you have to write it down for her. Good luck! I hope she finds a way to help you.

Kelsbels
New Member


Date Joined Aug 2014
Total Posts : 8
   Posted 9/19/2014 3:28 PM (GMT -6)   
i feel the same when i see rheumy so have started writing it all down and handing it over - they attach it to my notes and as my memory is so bad it helps me.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/19/2014 8:02 PM (GMT -6)   
Need to write down the complaints too.

I alway remember later what I wanted to say.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 9/20/2014 2:32 AM (GMT -6)   
Thanks for your responses :) I do write things down but then I have this list that is so ridiculous that I generally tuck it away somewhere and don't bother! Maybe I will whittle it down to the "main concerns". Yeesh.

I went to work today. What a really dumb thing to do. Now it's after 3 am and I'm unable to get comfortable enough to sleep. Sometimes it helps to make myself move about rather than rest and go to work. This wasn't one of those times lol. I was so sore and so cranky that I may have to bring baked goods to my co workers as an apology.

Autoimmune disease - because the only person strong enough to kick my a** is me! har har ;)
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