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New Member

Date Joined Sep 2014
Total Posts : 4
   Posted 9/21/2014 10:03 AM (GMT -6)   
Hello everybody!

I've had SLE for 8-ish years, diagnosed 3 years ago. My primary symptoms have been joint pain and fatigue along with skin changes in the past 18 months or so.

Two months ago, I started experiencing frequent, loose bowel movements with blood and mucus, bloating, abdominal pain. I had a flexible sigmoidoscopy and the endoscopist diagnosed ulcerative colitis. That was earlier this week and I'm still waiting for an appointment with a GI doc to discuss these findings. In the meantime, I wondered if anybody here knew of a link between lupus and inflammatory bowel disease? Google hasn't helped too much so I thought I'd check if anybody here has any experience of both.

I've got a post in the UC board here too, though nobody has mentioned a link between the two so far.

New Member

Date Joined Sep 2014
Total Posts : 1
   Posted 9/22/2014 1:08 AM (GMT -6)   
I do not know of a link but I was able to manage my long list of autoimmune-related symptoms for years with my diet until I suddenly developed IBD and could no longer eat fiber. My condition started deteriorating rapidly and I lost over half my hair, with the condition literally attacking my scalp, joints, organs, etc. I also have had autoimmune thyroid disease for 10 years and that condition shifted from hashimotos (low) to graves (high) so for a long time I thought my thyroid was causing the problems with my hair, digestion, etc. Once I got my thyroid under control I started realizing another condition was causing my many, many symptoms and I suspected lupus but my rheumatologist would not see for 3 1/2 months so after lots and lots of prayer, I looked in an OTC remedy book I had picked up at a yard sale that was published by the Medicine Shoppe. It said that the majority of lupus patients in their study who took 20 GRAMS of fish oil every day for about 9 months went into complete remission. I saw a similar study published on the U of Maryland website so I began the fish oil right away along with a low fat diet. Immediately my digestive and many of my other symptoms started to improve. My hair was not one of them but I decided I would try the fish oil for at least 3 months. I am now 4 months into it and I am amazed at how 'normal' I feel for the first time in years. I am not on any thyroid meds. My last two thyroid tests were in the normal range. My hair is growing back. My scalp is no longer under constant attack. My joints do not hurt. I recently found that I can even eat beans again - something I ran from for many months. I encourage you to check out that book - it is called 'healing without medication'.

Regular Member

Date Joined Mar 2014
Total Posts : 167
   Posted 10/23/2014 2:51 PM (GMT -6)   
Hi concertinal - I am pre-diagnosis with the lupus (mom had it, I think I have it very mildly) and I have an ongoing battle with IBS. about 2 years ago, I started having loose, sometimes bloody, stool 2-5 times a day. Went through many tests with the GI and he was not able to find anything, so he diagnosed me with IBS. I could have celiac, but have opted out of getting an endoscopy so far, as the colonoscopy was kind of hard on me. I eat gluten free now and stick to about 20 foods I know work for me. Fiber actually helps me. I can still flare up if I don't make good choices.

I have had various strange symptoms over the years and I am beginning to think they're all related. Currently, I am very exhausted at certain times, my legs hurt quite often, my symptoms are far worse during the pre-menstrual week, I get red blotches on my nose from time to time, and my biggest area of concern is that I have been having a lot of problems with my ears (hearing loss, pain, ringing, balance loss sometimes). I've been to various doctors - primary, GI, ENT, and heading to the rheumatologist and a neuro-otologist (long waiting list to see him until June of next year). So I do think that your issues could be related to each other, as I think that mine can be too. I wish you the best of luck. I have a ton of experience with the stomach problems from the last two years so if I can offer any advice, please let me know!

New Member

Date Joined Oct 2014
Total Posts : 8
   Posted 10/25/2014 12:49 AM (GMT -6)   
All my problems started years ago with IBS and abdominal pain. I would have alternating diarrhea and constipation, bad indigestion, gas, bloating, acid reflux/heartburn, etc. but never really had bloody stools. I had all the tests, scopes, etc, and they just said "IBS". I also have diverticulitis (had surgery for that). Anyway when I was still working, the more stress I had the worse my gut was. Found out my gallbladder really wasn't functioning, so I had it taken out. After that my heartburn/acid reflux stopped but everything else stayed. Once I quit working because symptoms getting worse and worse, it seems my bowel problems seemed to get better, but now I have different symptoms. Although I still have mad days with my gut. Most of my problems now are brain fog, traveling pain, joint pain/swelling, muscle soreness, bone pain, leg/foot numbness/tingling/weakness, back tingling/itch, did I say brain fog? fatigue, feeling nausea-generalized illness/malaise, blurred vision/dry eyes, insomnia, head/ears ringing, occasional wheezing in lungs, sensitive to fluorescent lights and strenuous exercise. I did read somewhere about the connection between the two but unfortunately I can't remember where I read it. I'll keep looking. The more I read the more I realize how little the docs know:(

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 10/25/2014 3:01 PM (GMT -6)   
I alternate between constipation and diarrihea. It's very aggrevating.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 10/26/2014 10:04 AM (GMT -6)   
Well lupus is inflammatory so inflammation can flare up anywhere I suppose. The same can be said for other autoimmune diseases. I've had IBD since I was very young, before they even called it IBD I reckon!
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