Help with seizures

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Lei073
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/29/2014 2:51 AM (GMT -6)   
I have been diagnosed with Lupus since 2010. Before that I was having seizures & never knew why. Since then I had them under control until 2 days ago! I got into 2 minor car accidents & thankfully nobody was hurt but I just want to know why I'm having these episodes again. When I went to the ER & the Dr. ran test, (EKG, X-Ray, blood work, MRI & Urinalysis... Everything came back normal except I had a UTI. The Dr. Said the smallest infection can trigger an episode. On top of that, I have been feeling sick with a sore throat, coughing & diarrhea.
Every time they do MRIs, Kat Scans or what ever needed of my brain, it comes back normal but I have seizures.
Does anyone know what can be done as far as procedure wise to stop or find out the cause of these seizures?! Please help.
I just want to live my life seizure free.

<Edited to add subject>

Post Edited By Moderator (Lynnwood) : 11/29/2014 8:53:29 AM (GMT-7)


Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 9/29/2014 6:05 AM (GMT -6)   
I'm so sorry this is happening to you.

I'm not the best one to reply because I'm still in the diagnostic stage (I have 4 of the 11 diagnostic symptoms including 1:320 ANA) but I just found out about the high ANA score last week. I will see a rheumatologist soon. I've spent years going to doctors for help with my symptoms and kept being told I had depression or chronic fatigue.

This past July I had a seizure out of the blue. All my tests came back clean (EEG, CAT scan and MRI). They put me on anti-seizure meds. Of course they didn't know about my high ANA at the time so I don't know if they give lupus patients anti-seizure meds.... But meds are out there to help with seizures. I'm seeing a neurologist for the seizure meds.

It will be interesting to see what happens if I get the lupus diagnosis. I wonder if the neurologist will pass me to the rhuemologist or if I'll continue seeing both.

I still have dizziness and I'm still light headed, even on the anti-seizure meds.

So, you might want to consult with a neurologist???

I hope you find help!

Lei073
New Member


Date Joined Sep 2014
Total Posts : 2
   Posted 9/29/2014 7:21 AM (GMT -6)   
Thx Kimstph. I know the experience of going through so many test & trying to figure out what is wrong is frustrating but you'll get there. Because I have a history of seizures with my Lupus, I have a Neurologist, Rheumatologist & a Cardiologist due to the fact that I have a heart murmur.
That seizure you had was scary I'm sure & there's a medical team out there that will help figure out how to get things on the right track for you.
Thanks for your help with my situation too.

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 9/29/2014 12:32 PM (GMT -6)   
I WAS terrified when I had the seizure because I'm a breast cancer survivor and didn't know I had any auto-immune issues. Until tests came back clean I was sure my cancer had metastasized to my brain and I would be dead in 3-6 months. It was a very scary experience!

I hope you get the help you need to become seizure free!

Kim

mzanonymousone
New Member


Date Joined Nov 2014
Total Posts : 1
   Posted 11/28/2014 8:22 PM (GMT -6)   
Hello I was recently diagnosed with lupus on the Saturday before thanksgiving.It was something I've lived with for 46 yrs and never knew until I visited a dermatologist,the physical I took last summer never produced anything wrong.Now that I've been diagnosed it would explain why my hair is coming out . . a lot. In the past my hair was my crown of glory,long soft pretty now thin as if I have cancer and sparse and getting hard to hide behind a bun. I'm thinking on top and balding and thinning on the sides top side to the back. I have joint pain,bursitis ,depression,ptsd,spinal stenosis,and last but not least sciatica. I wasn't diagnosed with none of these illnesses while living in Florida.,but my hair was still falling out. I also noticed my Rosie cheeks from time to time,but it wasn't as bad at that particular time. I do have allergies and a reaction to beinG in direct sun light and I'm very light sensitive. I noticed that before ever wearing glasses .. I now reside in heartland territory. Thank you for letting me share I've never told no one until now.
Signed mzanonymousone

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/28/2014 8:45 PM (GMT -6)   
Mzanonymousone, I hope you get relief from symptoms soon. I'm sorry you are going this this trial!
Kim
Breast Cancer Survivor, Lupus, Seizure Disorder
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