Why don't you just pick one of the diseases under consideration and tell them that's what it is? I was diagnosed with Lupus, Fibromyalgia, Sjogren's Syndrome, Raynaud's Disease, Bursitis, and some kind of Arthritis. Since Lupus has the most symptoms and the most varied and unexplained symptoms, that is the only disease I ever mention to friends & family. I guess I just figure it's bad enough that my Drs & I are confused, why complicate things. "Drs think it's Lupus" or "It's a side effect of Lupus" works well, too. (I do have a couple of friends I've found on this website that get the whole story in all it's gory detail.)
And yes, of course you can have inflammation without physically seeing it... like an inflamed liver or appendix... not gonna' see anything! But should show up in the blood work inflammation markers.
If might want to read the first thread, Lupus Resource, if you haven't already. One of the posts is about
questions for Drs.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde