Welcome to our forum and I'm so sorry that you've been diagnosed with Lupus. This sure can turn our world upside down doesn't it? It was first mentioned to me when I was about your age that I might have lupus. I was 23 when the doctor suggested it. It took them 13 years more until they finally agreed that was what I had and started treating me. I'll be 50 years old in February, so for a total of almost 27 years I've had the dreaded disease.
I tell you this so that you will know that people can live a very long time with lupus. You're lucky that they've caught it early and hopefully they will get your medications right and you will go into a quiet period and not require medications.
Everyone here, gets what you're going through. Not all of us have had the same symptoms but I'd bet we all have something close to it. Feel free to ask any questions you can think of. While we're not Doctors and can not give medical advice, we certainly can tell our experiences with whatever topic you're bringing up.
I'd suggest that you keep a journal with a list symptoms you're having, list you pain levels and where your pain is located. Take photos of any rashes or anything that doesn't seem right. Learn to listen to your body and when it's telling you need to rest then do so. However, remember light exercise, a good healthy diet, and trying control the amount of stress in your life iare some of the best things you can do for yourself.
Remember no question is dumb and no question is to embarrassing to ask of your Doctor or one of us here. Lupus can affect us in so many different ways that things can get really confusing as to when to call the Doctor or not. Keep coming and asking questions, we're all here to support each other and we'll do that with you also.
Please come back and let us know what your Rheumy has to say. Let us know how you're doing and ask any questions you may have. Welcome to the forum and I hope you start to feel better really soon.
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.