New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lupie-leesha
Regular Member


Date Joined Oct 2014
Total Posts : 25
   Posted 10/9/2014 12:52 PM (GMT -6)   
Is it as bas as people say it is?
Currently on plaqunil twice a day, 600mg ibuprofen 3 times a day. Prednisone makes me so sick.
I can't get rid of the pericarditis it just keeps coming back
Is anyone on imunor and what kind of side effects do you experience?

Thanks!
Leesha

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/9/2014 8:53 PM (GMT -6)   
Hi Leesha:

I've never taken this drug you have mentioned. I looked up imunor on the internet and if I'm reading things right this is a drug to boost your immune system.

Which you should never do when having lupus. We take drugs to suppress our immune systems so that our disease stops attacking our bodies.

I suffer from severe pericarditis and my cardiologist put me on colchicine 0.6mg twice daily. This is a gout medication but it works wonders to control my pericarditis. The bad thing is it can cause diarrhea really bad, I know if I take 3 a day of this, I can never make it to the toliet. So, on 2 a day I do okay with that.

I would suggest you contact your Rheumy and ask them about this drug imunor and if it is going to boost your immune system. If they say yes, I'd ask them why would they want to do that, because we normally are busy suppressing our immune systems.

According to the net this drug does cause stomach, nausea, vomiting and such. I hope you can figure out things about this drug before taking it. If it were me I'd want to be very certain as to what it is and why they want me to take it.

Hang in there and please let us know how your doing and what you found out.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

lupie-leesha
Regular Member


Date Joined Oct 2014
Total Posts : 25
   Posted 10/9/2014 9:06 PM (GMT -6)   
Hi Barbara!
Thank you for checking up on it ill definitely ask. I'm almost certain my Rhemy said it would supress it but with my memory I can't be certain. I was on colchicine too and prednisone they aren't working for me unfortunately and now I'm starting to have neurological symptoms. The diarrhea was terrible I remember! Lol I seen online that it makes you loose major hair like chemo I was wondering if that was accurate no one seems to know this med though! Thank you again so much for checking up on it and being so compassionate.
Big hugs! I'll let you know I see my rhemy again on the 21st.
Take care
Leesha
Dx- Lupus, Chronic Pericarditis, RA, Anemia and pending.
way to young to be this broken!

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 10/11/2014 9:41 AM (GMT -6)   
I think this drug is used when cancer patients get high doses of cytotoxins that damage bone marrow resulting in fewer rbc, wbc and platelets being produced. Although all of these blood components can be affected by lupus I have not heard of imunor being used for lupus patients. It might have application in extreme cases but I am only guessing.

http://www.ncbi.nlm.nih.gov/pubmed/16684664

I would ask lots of questions about using this drug and how it would impact your immune response overall. Lupus is a case of a misdirected immune system not a weak one but this drug seems to address bone marrow problems causing blood deficiencies.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 10/13/2014 4:34 AM (GMT -6)   
Hi Leesha, do you mean Imuran? Imuran, Methotrexate and Cellcept are often what doctors try if plaquenil alone does not control the lupus. I tried the Imuran and had a very bad reaction. Doctor switched me to CellCept and that has helped with all my symptoms. Everyone responds differently to meds so doctors often try different meds until they find one the patient is comfortable with. Good Luck!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Vitamin D, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

lupie-leesha
Regular Member


Date Joined Oct 2014
Total Posts : 25
   Posted 10/14/2014 12:02 PM (GMT -6)   
Thnkyou bill.

Fran, you are right it is Imuran.
Thank you for the advice IV written a long page of questions lo,!
I go next Tuesday to the rheumy, thank you everyone for your input!
Gentle hugs,
Leesha
Dx- Lupus, Chronic Pericarditis, RA, Anemia and pending.
way to young to be this broken!
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 10:33 AM (GMT -6)
There are a total of 2,974,056 posts in 326,155 threads.
View Active Threads


Who's Online
This forum has 161227 registered members. Please welcome our newest member, lennep123.
412 Guest(s), 9 Registered Member(s) are currently online.  Details
Adele1983, suppwife, alunke82, island time, Katerina-b, Stan1961, RichardNY, suttie, straydog