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Lynnwood
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Date Joined May 2005
Total Posts : 7723
   Posted 10/11/2014 9:44 PM (GMT -6)   
So a few days ago I was in New Orleans, where you walk everywhere. Not a big deal, I've been walking the same amount, more or less, at home. On the 4th day, out of the blue, the bottoms of both feet started killing me.

Pain was evenly distributed across the bottoms of both feet. Slightly swollen, red on the bottom and a little ways up the sides, hot to the touch. Ended up taking a cab back to the hotel and sleeping about 4 hours. (In the middle of the day.) Pain meds didn't seem to help, but soaking them in the somewhat chilly pool felt pretty good. I'm talking a good 7 or 8 level pain.

After the sleep, was okay walking out for dinner and around a bit more. Next day, felt fine, then started hurting again. Not quite as bad as the first day -- and I took a pain med earlier as well as lots of ibuprofen for inflammation.

Made it home, but ankles and feet are swelling -- not a lot, but enough so I notice. And at the end of a very lazy day today the bottoms are hurting again. Part is probably a lot of salty food on the trip, and maybe not as much water as I usually drink.

I know we get random areas of inflammation, but honestly I haven't had any inflammation for a while and was caught a little off-guard by this. Has anyone else had the bottoms of the feet revolt like this?

Thanks.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/11/2014 11:28 PM (GMT -6)   
Yes, when I was working. I rarely sat down when I was teaching. My feet would swell up huge and hurt something terrible.
I hope they feel better soon.

Right now I'm having trouble with my left foot. It hurts along the back of my ankle and down the left side of my foot. The top of my foot is numb though.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/12/2014 9:01 AM (GMT -6)   
This is much different than that kind of swelling, Joy. I've had that before and this is much more just the bottoms of the feet. Like someone has been beating them. Pain I've had from standing all day is nothing like this was/is.

Woke up with bottoms hot & painful this AM. Good thing I see rheumy Wed.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/12/2014 1:34 PM (GMT -6)   
I hope you get an answer and feel better quickly.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 10/12/2014 4:34 PM (GMT -6)   
I'm wondering if it was hot concrete and maybe that is what has made it become more inflamed rather than say, your floors at home. I find heat really exacerbates things for me.

Have you tried some ice packs or maybe even a cool foot bath? If the somewhat chilly pool helped it wouldn't hurt to try. They almost sound as though they are burnt. Do they feel like a bad sunburn on the bottom? Wouldn't that be odd. But that's lupus for ya! ;)
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/12/2014 5:27 PM (GMT -6)   
Yup, sitting around with the bottoms of my feet on ice packs -- BRRR!!! And took some prednisone hoping to slow the inflammation down & knock it out. We will overcome! lol

Actually, walking at home is just as much hot concrete & humidity & heat...if not more. (Atlanta summer vs. New Orleans fall.)

I don't think this is at all tied to circumstances, just Lupus deciding to raise it's ugly head at the most inopportune of times.

I might have been a little more susceptible than usual due to the huge tetanus/whooping cough reaction I had the week before and my diet in New Orleans was not as "anti-inflammatory" in nature as what I have been eating at home.

Thanks for everyone's comments!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Mocha2009
New Member


Date Joined Apr 2014
Total Posts : 4
   Posted 10/13/2014 10:36 AM (GMT -6)   
I have a lot of issues with my feet. I can walk through a grocery store with no problem but after standing in line for a few minutes, the walk from the grocery store out to my car is extremely painful. The bottom of my feet will become tender and I can't put any pressure on them.

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 10/14/2014 4:03 PM (GMT -6)   
I have had trouble with my feet, but not quite like you described. But you mentioned the reaction you had to the whooping cough/tetnus vaccine. I had one last year and 2-3 wks later got extremely sick with a respiratory infection that took several rounds of medicine and prednisone over a good month's time to get under control. This seems to be common for me with flu shot as well.

I stopped taking it as it seems like I get sick only in the years I get a flu shot. Not discouraging anyone from getting vaccines. Sometimes they are so important and necessary and generally helpful to most people. But does anyone else find they seem to trigger a reaction/flare - as though they have triggered an over-reactive immune response?

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/14/2014 4:32 PM (GMT -6)   
I was really glad I didn't have a flu shot -- they wanted to give it the same day as the tetanus/whooping cough. I think I would have not been happy!

I have actually never had a flu shot, but don't have any of the normal risks associated with getting the flu (not out around people, no small children, that sort of thing), so haven't worried about it. And haven't had the flu in a very long time.

Feet getting better with a short course of prednisone -- too bad this was the one time I was traveling without it!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/15/2014 4:15 PM (GMT -6)   
So very sorry your hurting, my feet are swollen and have ulcers on them and blood from under the toe on my big toe last night and they really really hurt! Go and buy that tape they use for sprains put it in the freezer and wrap you feet, this is what I'm going to do and I sure hope your doing better soon...Mine is from RA not Lupus but still hurts like heck and I just wanna stay in bed with all this pain...(bad Idea, I know)
Many well wishes and hope your doing better soon and try the ice compresses...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 10/15/2014 7:49 PM (GMT -6)   
Hey Lynnwood, any news on the feet with the rheumy today? Oh and I meant to ask about the cholesterol too. How are you doing?

Chartreux that sounds very painful :(

Thinking of you both and hoping you get some relief.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 10/15/2014 8:53 PM (GMT -6)   
Feet are MUCH better due to the prednisone treatment. (3 days @ 15 mg, 2 days @ 10 mg, 1 day @ 5 mg - you know, the regular drill.) Dr wasn't very interested, wanted to say I have plantar fasciitis -- well, I've had that before, it's a muscle down the center of your foot, not every part of your foot that touches the ground! I mean, even my toes hurt and I couldn't clench them due to pain & swelling. Looking at the side of my foot you could see the redness up from the sole to about an inch off the floor. And a pain number of 7-8. Anyway, it's clearing up so I'm a happy camper.

The cholesterol -- I'm double checking my diet for 6 weeks, then we'll test again. Also having "CT Cardiac Scoring" done - a new test insurance doesn't cover yet that checks for calcium in the coronary arteries. Goes along with cholesterol numbers so we can decide it satins are necessary or not. (I'm hoping not!)

Chartreux, I can't imagine trying to wrap my feet with tape -- it hurt just having the sheet on them! I did put them on ice a bit, but I think it hurt as much as it helped. I hope you find a solution for your feet soon. Do you know why the ulcers?

Thanks everybody!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/15/2014 11:12 PM (GMT -6)   
Lynn:

So glad to hear that your feet are feeling better. It's amazing what prednisone works for us doesn't it? Glad to hear that overall health is improving and you are feeling more like yourself. These are all good things to hear. I just wanted to let you know I've been following the thread and wanted you to know I was keeping up on how you're .

Chart wrapping your feet with cold tape sounds not very pleasant, I'm sorry to say. I know my feet are also cold 24/7 and I just hate that. I need my feet warm, however, while doing PT they ice my foot. I'm now working on trying to take the therapist into putt heat on my foot. LOL

I just wanted to wish you both a good night and I hope that you both will continue to feel better. Please take care and I'll be around to check on your threads.

Love,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 10/15/2014 11:18 PM (GMT -6)   
Good, I'm glad the prednisone did the trick! Doctors some days- Yeesh. But regardless, the main thing is that it's getting better :)

That CT cardiac scoring sounds like an excellent advancement in testing. I'm hoping meds aren't necessary too, good luck and my fingers are crossed for ya!
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/16/2014 2:36 PM (GMT -6)   
Thanks Lynnwood, my RA doc said I have RA ulcers on my feet...they do throb and hurt...I do hate using ice because of raynauds, but it's what a doctor would say to try... I have seen foot doctors in the past, but I'm leary of them as they were both bad doctor's...Plus if it's RA, then what good is a foot doc?

Lynnwood so glad your getting better...Hope you continue to do better.

Going to try taking a cat nap...hope your feeling better.

Barbara, still keeping you and David in my prayers, it's your turn to get to feeling some what better...or at least to start having some good days...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/2/2015 2:05 PM (GMT -6)   
Well, starting the year with another major attack on my feet. Not happy about this!

And the prednisone pack helped my feet, but messed up my sleep which made everything else hurt. So I'm trying to treat with ice and avoid the prednisone this time.

May need to make a Dr appt just for this. I thought it was a once or twice overdoing-it type of problem, but this is the 3rd time in 6 months. (Plus one time really minor that I'm not counting.)

Fun, fun, fun,..... someone took my t-bird away!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 1/3/2015 6:59 AM (GMT -6)   
That stinks. I agree, time to drag yourself to the doctor :(

Let me know how it goes, maybe your t-bird can be replaced with a ferrari!!
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2608
   Posted 1/4/2015 8:48 PM (GMT -6)   
Lynnwood, while I was a college student I had a similar experience, and then again during a three month backpacking trip after college. My feet hurt and became so swollen that I had couldn't walk for a couple of days. Every time it happened seemed to correlate with days of heavy walking. I didn't get treatment and have never experienced anything like this again. It was strange and excruciatingly painful.

I hope your doctor futures out the cause.
SLE, fibro, renauds, restless leg?

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/8/2015 3:04 PM (GMT -6)   
PCP thinks it's the most extreme case of Plantar Fasciitis she's ever seen. Apparently it usually only hurts in the heal, it's very unusual to damage the whole thing along the entire bottom of the foot. But of course that is what I did.

It seems what *might* have happened is that the tight Achilles Tendons that have bothered on/off me for years decided to pass the buck along to the tendon along the bottom of me feet.

Treatment -- rest, ice, repeat. Longer term treatment, same as for Achilles - stretch & strengthen calfs, achilles, feets, etc.

Slowly feeling better, thank goodness. Particularly good they are improving since I ran out of pain meds before Christmas and am having quite a time getting them renewed.

Thanks for everyone's concerns & comments.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lostlady
New Member


Date Joined Jan 2015
Total Posts : 9
   Posted 1/8/2015 11:38 PM (GMT -6)   
I read your post and I can't help, but think you may have Planters Fascheitis. I think that is how it is spelled. I had that once and had to get a Medrasol shot in my heals. It hurt horribly, but it cleared it up.

Lynnwood said...
So a few days ago I was in New Orleans, where you walk everywhere. Not a big deal, I've been walking the same amount, more or less, at home. On the 4th day, out of the blue, the bottoms of both feet started killing me.

Pain was evenly distributed across the bottoms of both feet. Slightly swollen, red on the bottom and a little ways up the sides, hot to the touch. Ended up taking a cab back to the hotel and sleeping about 4 hours. (In the middle of the day.) Pain meds didn't seem to help, but soaking them in the somewhat chilly pool felt pretty good. I'm talking a good 7 or 8 level pain.

After the sleep, was okay walking out for dinner and around a bit more. Next day, felt fine, then started hurting again. Not quite as bad as the first day -- and I took a pain med earlier as well as lots of ibuprofen for inflammation.

Made it home, but ankles and feet are swelling -- not a lot, but enough so I notice. And at the end of a very lazy day today the bottoms are hurting again. Part is probably a lot of salty food on the trip, and maybe not as much water as I usually drink.

I know we get random areas of inflammation, but honestly I haven't had any inflammation for a while and was caught a little off-guard by this. Has anyone else had the bottoms of the feet revolt like this?

Thanks.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 2/10/2015 9:39 PM (GMT -6)   
Well, darn!

I can't believe feet are still such an issue here. PCP was convinced of severe Plantar Fasciitis, so I treated with rest, ice, stretching, all the recommended things. It seemed to be getting better, but I still wasn't doing much walking after a month. (Which takes me to the end of January.)

Now in the last week it seems to be worse again. Less actual pain and more tingling...but enough tingling to make my days uncomfortable and hard to fall asleep at night, even with my horse tranquilizers. (lol 300 mg trazodone!)

I started on a Pred dose pack on Monday - 5 days @ 15mg, 3 @ 10 mg, 1 @ 5 mg... I don't know where to turn if this doesn't help.

Neurology or podiatrist? I have new running shoes which hasn't helped... lots of water & keeping feet up...

Sigh. Thanks for listening.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 2/10/2015 7:56:59 PM (GMT-7)


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 562
   Posted 2/15/2015 7:18 AM (GMT -6)   
Hi Lynnwood,

I had a bad case of this about 4 years ago. I went to physio and he put a tens pack on my foot (little electrodes zapping) it helped alot. I only had it done the one time, but I have never had the pain again (touch wood). If it happens to me again, I know where I will be.

All the best to you.

Julia

Becky20
Regular Member


Date Joined May 2014
Total Posts : 68
   Posted 2/15/2015 8:54 AM (GMT -6)   
I dunno, some of your symptoms sound similar to around the time my arches fell. My feet were swollen and hurting all the way to the back of my heels. I ignored it and stayed on my feet just wanting to get through the workday. Then I had searing pain, felt like someone cut the bottom of my feet with a knife. When I got home, I realized both my arches had fallen. I think it was caused by inflammation of the posterior tibial tendon. Was 19 at the time and 130lbs. It's the odd things like this that have happened to me since childhood, like my arms and elbows falling out of socket just from a slight pull that make me wonder if I haven't had lupus or related issue my entire life.

Nowadays my feet can hurt all over. Rest, elevating my feet, shoe inserts, arch support, pain meds, and taping my feet to help me get through the day (if I'm all day on my feet) are how I cope. There are several different foot taping techniques and many how-to YouTube videos.

It may not be your issue at all but I hope you find answers and relief soon. My local Walmart has one of those dr Scholl's foot assessment machines that measures the distribution of pressure through your foot. It will then tell you to pay $50-60 for a shoe insert but it might give you more insight to where and what the problem may be.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 2/15/2015 11:11 AM (GMT -6)   
Prednisone seems to be doing the trick, which means to me it is/was mostly Lupus inflammation.

Of course, Prednisone also means mood swings, a bit of aggression, weight gain, puffy feeling, lack of sleep, and all the fun stuff.

Yesterday I waked more than I have in a month, and feet were only slightly tingly and are pain-free this morning.

Yay!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/15/2015 9:41 PM (GMT -6)   
Glad to hear it's better.

I found out my foot pain was a rheumatoid node on my heel. Ugh.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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