please help me understand my results?!

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melissads1
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 10/13/2014 3:26 PM (GMT -6)   
At a routine check up recently I let my doctor know I've been having some pretty bad joint aches and along with major fatigue. I mean like the kind of fatigue I felt when I had mono as a kid! This prompted her to test me for anas. My results were positive with a 1:320 titer, speckled pattern. So she referred me to a rheumatologist. I can't get in to see him for like 6 more weeks so in the meanwhile im trying to do some self education.
I've learned that a 1:320 is significant enought for concern about possible autoimmune disease and that speckled pattern narrows down the possible conditions to a smaller list. Lupus seems to be the one on that list which I have symptoms of. its my understanding that a positive ana test is just one of the 11 criteria they use to diagnose lupus and that if 4 of the 11 symptoms are present then a positive diagnosis of lupus can be made. I believe I have 5/11
1. Arthritis
2., photosensitivity
3.mouth sores (I often get canker sores and also cold sores (not sure if cold sores count or not),
4.ive also had protein in my urine in the past.
5.positive ANA test

does this mean lupus for sure? Or are there other tests ill need to rely on for a diagnosis? Can a person have an ANA 1:320 speckled and 5/11 of the lupus criteria not be diagnosed with lupus?

In the beginning (a couple weeks ago) I was terrified and devastated. After the initial shock passed iI've found myself just anxious for answers and even a bit relieved in a sense that there might be an actual diagnosis and care plan to go along with what's been wearing me down so badly!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 10/13/2014 3:36 PM (GMT -6)   
Sounds like you are putting everything together correctly. There is no reason to panic, and hopefully you will be one of the many of us that is treated successfully. Treating the fatigue will be a major improvement to your life, I promise. It was my first symptom as well!

Sometimes what we consider a positive marker (like arthritis) the Dr will not classify as actual arthritis, so we can't say for sure that you have Lupus, only your Rheumy can make that diagnosis.

In any case, sounds like you are on the right track to obtain a care plan that will work for you!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

melissads1
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 10/13/2014 3:46 PM (GMT -6)   
The fatigue has been horrible! I have 4 kids and all the work that comes along with a large family. I find myself making lists out loud of what I need to complete next, as if mapping it out will somehow give me the direction and boost I need to complete my chores and tasks. The guilt I feel every day is overwhelming too. I have a 20 month old daughter and some days I get so mad at myself for not finding the energy to play with her more. Looking back I realize this has been a problem sporadically for many years but has just gotten much worse in the last 10 or so years.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/13/2014 4:19 PM (GMT -6)   
Sounds like you're on the right track.

One of the drugs they treat you with will help with the fatigue, but it will take some time to kick in. It takes about six months to fully kick in. Meanwhile you can get your kids to help you more. (Picking up toys, putting clothes in drawers, dusting, pushing a swiffer, and etc.....) I learned to help wash dishes at six. I dusted furniture with duster about that time too.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

melissads1
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 10/13/2014 5:04 PM (GMT -6)   
Good advice! Thanks :)

So, then my assumption was correct that, (as long as the doctor agrees my symptoms are what I feel they are) I am likely to be diagnosed with lupus? *Note that i am not currently experiencing all the symptoms.The instances of protein in my urine where during pregnancy (no clue if they're present now) and im also canker sore free at the moment although those are recurrent.

Another question: What about hot flashes and night sweats? I thought what was going on with me was hormonal (like a very early menopause. Im only 37!) I get hot flashes and night sweats like crazy and I've been extra moody. Do these things ever seem to be connected to lupus?

Also thinking back, my last two pregnancies (in 2013 & 2005) where extremely difficult. I had almost constant pre term labor contractions that would go on for hours, sometimes days! Without a clue as to the cause (im a healtht non smoker, no drugs or alcohol or anything of the sort) my OB said I have an "irritable uterus". I was hospitalized a couple times to stop the labor. Both of my last two children came early- one at 34 weeks and one at 36. Although thankfully they were both healthy as can be!
Has anyone heard of preterm labor being connected to lupus? Just curious!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 10/13/2014 5:08 PM (GMT -6)   
Yes, unexplained fevers (night sweats) are part of Lupus. Hot flashes can be too, but not as many people report them.

Once you get onto Plaquenil for a few months, the fatgiue, night sweats, and fevers should decrease.

Yes, it's a likely diagnosis for you... but don't tell the Dr what you think it is!!! It's important to share all the symptoms you have, but let the Dr brainstorm -- too often if we mention a diagnosis Drs forget to check out everything and this is how some diseases get missed.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde
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