Feeling terrible for past month

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Regular Member

Date Joined Jul 2010
Total Posts : 468
   Posted 10/14/2014 1:30 PM (GMT -6)   
I havent been on this site for awhile so I just wanted to start off by saying hi to everyone again. This past month has been very rough. I have been having chronic chest pains and i had a very stange incident where I woke up in the middle of night with severe stomach pains so bad I had to go to the hospital. The next day however I was just fine. I actually looked up something I guess lupus sufferers can get (amoungst all the other things) called acute stomach. I have also been having strange incident of feeling very weak and my arms and legs have gone numb.I also have been very short of breath especially if I move around to much. I also had a really bad jolt last night through my body. I have had leg twitches in the past but this time my entire body like jolted kind of like a really bad chill. My boyfriend who I was next to asked me what was wrong and I just lied and I said I was cold because he has been so worried lately. Has anyone ever expierenced these symptoms? I have been doing pretty good with my lupus so this is all very upsetting to me. To make matter worse I have been trying to contact my Rheumy for 3 weeks and I can not get ahold of him. I just tried again today and again I have gotten no where. I did see my GP who  perscribed  noproxan and  also a medication for acid reflux. I am affraid to take the noproxan due to past issues I have had with hives on a much lower dose of anti inflmatories and the reflux med did give some relief but just some and I am still having pains. She thinks this may be a falir but doesnt want to perscribe my plaq again until I see my Rheumy I am so fustrated I mean I love my Dr but I am about to fax a letter to his office requesting my files and that be that.
Thanks for reading my rant.

Forum Moderator

Date Joined May 2005
Total Posts : 7673
   Posted 10/14/2014 1:39 PM (GMT -6)   
No Dr response for 3 weeks? While you're having a flare?

Do they just not respond or want to give you an appt far out or what is their story? This isn't right, and I think you'd be perfectly justified in looking for a new rheumy!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Oct 2014
Total Posts : 8
   Posted 10/27/2014 12:27 AM (GMT -6)   
Hello Lawchick. I am new here and just came across your post. I have had the same exact thing you described. I have had it happened twice. Once I was walking up the stairs and my left arm went numb and all the power went out of it. The other time, I was waking up in the morning and it happened in BOTH arms. It is the weirdest feeling ever! For me it was a feeling of instant exhaustion and it only lasted for about a minute or two. What a horrible disease:(

Regular Member

Date Joined Jul 2012
Total Posts : 73
   Posted 10/28/2014 6:06 PM (GMT -6)   
So last month I landed in the ER with severe stomach pain. All they did for me was run an X-ray and found nothing. My legs and arms go numb and I've been on prednisone and a bunch of other meds and my rheumy cannot figure it out yet. I hate going in there with still the same symptoms because he's even given me cortisone shots from my neck, lower back down to my thighs, calves and ankles! They are so painful and don't seem to help.

Lupus is stupid!!!!

Regular Member

Date Joined Jul 2010
Total Posts : 468
   Posted 11/21/2014 10:05 AM (GMT -6)   
Sorry it has taken me so long to get back on here I have just been so under the weather lately. Lynwood I finally did hear from my Rheumy he was appologetic he has a new office staff and I dont think he is getting the messages. I am forgiving of him because he is the first doctor who truly ever helped me. I went for all kinds of tests and one came back abnormal and that was a pulmonary function test. I have been very out of breath lately it just hits me. I have also been very fatigued and when I am out of breath I get these strange headaches like not enough oxygen type headaches. Still waiting for a second Pulmonary doc to review the test. To make matters worse I am dealing with all this while not being able to take a day off from work due to office staff being cut. Sometimes I feel like I am going to literally drop.

Brismom im sorry you are dealing with that. I know how scary and terrible it feels. Last night my legs were feeling numb it must be a nerve thing.

Snowcone are you still dealing with stomach pain? This was truly such a strange episode. It was the worst pain I ever felt in my life and its not like I ate anything bad or did anything differnt that would cause it. Luckily I havent had it happen again.

Post Edited (LAWCHICK) : 11/21/2014 9:08:31 AM (GMT-7)

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