I was diagnosed with MCTD in June. I have a positive RNP antibody and as far as I know, I am negative for all other antibodies. I basically had a year long flare. I saw a scleroderma specialist this past week who gave me a script
She was also very upset that I have been on 20mg of Prednisone for two months but I have FINALLY got this flare under control. This is the best I have felt in over a year. No sore joints. No more swollen hands, no more inflammation, ankles are not swollen, NO MORE TONGUE ULCERS. Still have some slight Gastro issues. (heard that MTX aggravates this as well)
She gave me a skin score pinch test which was very low. I think a 7 out of 51? I don't have "hard skin" anywhere except for two fingers that have fibrosis from being inflamed for so long.
Anyway, I have heard many horror stories about
this drug. I will start it on Sunday afternoon to give me a day of rest. I was also given Folic Acid to take once a day.
Can anyone give me their experience with MTX? Has it been effective for MCTD/Scleroderma if you have it? Does it make you ill? Does it get better? I am so stressed over this disease, and I know many other people have it much worse considering I can still exercise, hike, etc. , but I really would like to get this under control so I can keep working for my family.
Oh yes, do you take the folic acid the SAME day as the MTX or avoid it that day and start it the day after?
Post Edited (greypilgrim256) : 10/30/2014 4:03:07 PM (GMT-6)