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Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/21/2014 10:02 PM (GMT -6)   
My biggest lupus complaint is fatigue but I've noticed that many days I start feeling better in the evening.

Has anyone else noticed fatigue gets a little better later in the day? I'm still tired, but I seem to function a little better. Of course this only happens if I've had a bad day and was in bed all day.

Thanks!
Kim
Breast cancer survivor, Lupus, Seizures

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/22/2014 12:37 AM (GMT -6)   
I feel a little more energized in the afternoon, but it's a small window of an hour or two before I start wearing out again. :/
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 11/22/2014 6:37 PM (GMT -6)   
I have been having a lot of trouble with my stomach lately, unable to eat, nausea etc. (ulcers)

Since I can't eat as well as I should lately I bought some meal replacement drinks from the drugstore. As a happy side effect they have done wonders for my energy. They are chock full of vitamins and minerals etc and liquid so that the good stuff is absorbed quickly and easily.

Just watch the ingredients, some can be high in sugar. They are available gluten free, lactose free, sugar free etc.

I highly recommend a nutritional meal replacement shake as a boost when fatigue is really bad. Even in between meals. I've used boost, ensure and generic brands and they really help me.

Depending on your diet etc you would have to determine if it's right for you and I always run things by my rheumy or gp. I just wanted to share a helpful tip that may work for others :)
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/22/2014 9:22 PM (GMT -6)   
I will definitely try the meal replacement drink. I am so weary of being tired all the time.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 11/23/2014 6:43 AM (GMT -6)   
It's good in a pinch and when you can't eat as well as you should. Don't use it as a permanent fix though, it's better to get your vitamins and nutrients naturally through good old food! :)

I miss food :( we used to be great friends..

Are you on plaquenil? It really helped with my fatigue once I was on it a few months.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/23/2014 8:56 AM (GMT -6)   
I will start Pacquenil after my next appointment (December 16). My rheumatologist wanted me to get an eye exam before starting the med. My eyes are healthy so should be starting Pacquenil soon. I hope it helps! I am to the point I don't think I can live like this much more.

FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 11/23/2014 10:01 AM (GMT -6)   
Hang in there a little longer. The plaquenil should make a huge difference. But know that it can take a few weeks to a full months to fully kick in. I know the fatigue and lack of any ambition is awful, but it will get better as the medication starts to do it's job. Just be patient for a while longer.
Make sure you mention how badly you have been feeling at your rheumatologist appointment, your doctor might consider a prednisone burst just to get you through this flare. Good Luck!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Vitamin D, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/23/2014 6:23 PM (GMT -6)   
Thank you, everyone for your help and kind words.

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/23/2014 6:39 PM (GMT -6)   
Will Pacquenil also help with mental fog and memory?
Kim
Breast cancer survivor, Lupus, Seizures

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 11/23/2014 8:07 PM (GMT -6)   
Plaquenil is most known to slow the progression of the disease process. Generally another first step is Prednisone to control inflammation. Then one of three things next - Imuran, Cellcept, or MTX.

For me, the significant (measurable as a big drop in IQ points) cognitive dysfunction was improved when Cellcept started controlling my disease.

Are you getting "deep restorative sleep" and eating a fairly healthy diet? These are 2 things, especially sleep quality, that often fall to the wayside when we get Lupus.

You probably need to discuss your sleeping habits & fatigue level with your Dr to see if you need help sleeping -- that can help the brain a lot. Also make sure you are eating enough protein - we women often don't get enough. Rheumy should have checked for vitamin B12 - that also affects brain function & is often low with Lupus.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 11/23/2014 8:08 PM (GMT -6)   
Plaquenil is most known to slow the progression of the disease process. Generally another first step is Prednisone to control inflammation. Then one of three things next - Imuran, Cellcept, or MTX.

For me, the significant (measurable as a big drop in IQ points) cognitive dysfunction was improved when Cellcept started controlling my disease.

Are you getting "deep restorative sleep" and eating a fairly healthy diet? These are 2 things, especially sleep quality, that often fall to the wayside when we get Lupus.

You probably need to discuss your sleeping habits & fatigue level with your Dr to see if you need help sleeping -- that can help the brain a lot. Also make sure you are eating enough protein - we women often don't get enough. Rheumy should have checked for vitamin B12 - that also affects brain function & is often low with Lupus.

You may feel better later in the day, after you've eaten protein?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously." - Oscar Wilde

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/23/2014 8:13 PM (GMT -6)   
My B-12 level was actually high and I don't take a B-12 supplement, but not so high the doctor was concerned. I do have trouble sleeping...

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/23/2014 11:26 PM (GMT -6)   
Make sure to avoid melantin(?) to help you sleep. It's sold in many over the counter sleep aids.
It can cause flares in us.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 11/24/2014 7:21 AM (GMT -6)   
Good to know, thank you Joy!
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