Behind closed doors.... I'm flaming mad!!
I'm 40 something, have had several bouts of pericarditis, pleural effusion with thoracocentesis is 2009. Did fairly well until April of this year with onset of chest pain. Pulmonologist said I had atypical infection, so he gave me antibiotic, which helped the dyspnea quite a bit. Still had the inspiratory pain which he thought would get better post pneumonia. It really hasn't. New "nodules", ground glass stuff on CT. Fine. Repeat Ct 6months later, more nodules were discussed with me by Pulmonologist. He thinks they are inflammatory, rather than cancer. said NSIP type changes on HRCT, and pleuritis ( tho he could not hear rub today) from lupus.(NSIP =nonspecific interstitial pmeumonitis). Bottom line is since I am already on immunosuppression, no other treatment options. Steroids have bad side effects he tells me. (As if I don't know). So, I have no alternative other than to live with this chest discomfort, hoping the pmeumonitis calms down and I don't end up with irreversible interstitial lung disease or fibrosis, for short. Hoping, it goes away and doesn't get worse. Thinking, I care for my elder parents, am a sole provider ( income), thinking....how am I gonna tolerate this long term, or God forbid it worsens. In the past, I've always managed to get better in time. Angry now that I am not. Fearful of what is ahead. On bright side.....maybe not cancer.