Trying to get a grasp on some things-
I am: 34 yo male
Raynaud's, alopecia, fatigue began just under 3 yrs ago
Since - osteoarthritis in right foot, continued fatigue(extreme at times)
Rash on face( unsure malar , but fits descript
ion ) Degenerative disc disease in lower back
Spent 2 yrs with Rheumy who put all symptoms on stress and laughed at my concern for lupus.
Currently - New Rheumy ( better)
Hands under microscope confirmed secondary raynauds
Positive ANA 1:80 speckled- All other bloodwork is good. I have had elevated Creatine in blood but have good muscle mass and just started working out again - hoping it helps but hard to do much)
* Factor XI Assay - low / deficiency - think there is a strong relationship with this and SLE. Rhemy- mentioned it wasn't low enough for concern ? ( in the 50's for the measurnt of units - approx. 13 units below minimum range)
They are not diagnosing with lupus but want to treat as such with Plaquenil.
Also with the raynauds - 40 F starts to affect me and the cold seems to hit me hard with pain & fatigue.
Also mouth sores and nose
Would appreciate any thoughts-
Post Edited (PZH1355) : 12/10/2014 8:28:53 PM (GMT-7)