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Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 12/17/2014 7:23 AM (GMT -6)   
Anyone have CNS lupus? If so, did it show up in MRI or spinal tap tests? My rheumy said my symptoms are consistent with CNS Lupus, but that CNS Lupus is really rare. Rheumy is going to consult with Mayo. My MRI and spinal tap tests were clean. I was just curious what other's experience has been?

Post Edited (Kimstph) : 12/17/2014 5:27:57 AM (GMT-7)


Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 12/17/2014 9:22 AM (GMT -6)   
A couple of people have passed thru with the CNS lupus diagnosis, but I don't think they are around anymore. I can't remember where it shows up - I think it's in spinal fluid. Will have to look it up later, no time now.

Symptoms are very much the same as the serious cognitive dysfunction we were talking about before. I think the only difference is whether or not seizures are involved and whether or not they find anything on physical tests.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 12/17/2014 7:26:13 AM (GMT-7)


Kimstph
Regular Member


Date Joined Sep 2014
Total Posts : 55
   Posted 12/17/2014 10:27 AM (GMT -6)   
Thanks, Lynnwood. Don't spend time looking anything up. I was curious what others had experienced. I need to learn to be patient as my rheumatologist seems to be a good one that is working hard to get my diagnosis narrowed down. I have a hard time waiting, always have!
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