First off Merry Christmas to you all. Wow, it's hard to believe that 2014 is almost over. Last year at this time I was laying in a hospital bed with a very bad case of pneumonia. Well, I'm home this year and I'm thankful for that, however, I'm STILL FIGHTING C-diff.
I've had this stupid bug since the 6th of November. I saw the ID Doctor and they instructed me to start to taper my antibiotics, which I did. Wouldn't you know that after 5 days my symptoms got worse and I'm now back on the full dose of antibiotics again. I was told that there is one other medication I can try before I may need a stool transplant. Yep, you read that right, a stool transplant.
Apparently, patients who are immuno suppressed like I am and can not get rid of their C-diff, they do a stool transplant on the patient. It sounds terrible, gross, disgusting all those things, but I've been assured it will work. I'm not going to give TMI, you can look it up or use your imagination on this one.
My daughter has been sick 7 days now, and she's been really sick. Finally, she asked to be seen on Christmas Eve. Off to urgent care we go, her temp was really high, they did an x-ray and said she had bronchitis. Gave her some antibiotics and sent her on her way. Well this evening the urgent care called and said that they reviewed her x-rays and she has pneumonia and not bronchitis. Needless, to say I'm freaking out about
She's never had this before and she's been so sick. Of course, we're worried will I get it from her, or maybe her Dad. My biggest worry though, is that she's going to Hawaii for winter semester to take her biology classes. She leaves on the 4th of January. I sure hope she's well enough to travel there and be there for a full 30 days. I wish I could go with her just to watch over her now. I mean I would LOVE to see Hawaii, but I'm NOW more worried about
her health and the MOM in me wants to not leave her side at all.
She was up at 3:00 this morning having trouble breathing. I was up with her and watching like the Mother Hen I am. She slept a lot today, we did manage to
open presents, which she hadn't gotten any for us. She's been in bed totally laid up for the past 7 days. We told her not worry at all about
it. So, could you all please say prayers or send healing thoughts her way. She needs to be at 100% by the 4th of January for her trip.
As for me, I don't think I'm EVER going to be well again. My lupus profundus is breaking out everywhere and my Doctors are fighting over which medication to give me. I'm totally confused on what to do about
which Doctor to listen to. The C-diff is a real BIG PROBLEM and I really don't want to go through a stool transplant.
I'm looking at having to have my foot operated on AGAIN in January. The Orthopedic Doctor thinks I'm having an allergic reaction to the material that he anchored my tendon to my heel to when he put the new tendon into where my Achilles tendon was. So, he's going to have to
open up the whole bottom of my heel, remove the item and will also shave any bone that seems to be in the way.
As for my leukemia, my anemia is getting much, much worse and I'm so fatigued. I just feel like death warmed over 95% of the time. I'm having to do more and more things around the house. I have NO ONE to help me with it and hubby will not allow me to hire anyone to come in and clean for me. I wouldn't mind so much, IF, he'd carry the slack. He doesn't do that though and I'm so much of a cleaning freak, I can't stand any messes in the house.
he fusses at me for working around the house, and yet he doesn't seem to get, that if our house isn't kept as close to spotless it could cause me to get sick and die.
Like I was told my type of leukemia, there's NO CURE for it. That MOST patients like 5-8 years (some 10). That's IF AN INFECTION doesn't KILL US FIRST. A lot of us die from infections, that's why I have to be so careful with everything.
Well, that's my update, sorry it took so long to give one. I hope you all had a great Christmas and have a healthy 2015. We ALL DESERVE to have a healthy and happy 2015. Take care and you're all in my prayers.
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.