Lupus and Discoid Lupus

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NanaBee
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Date Joined Jun 2005
Total Posts : 541
   Posted 1/7/2015 11:00 PM (GMT -6)   
I was wondering if it is possible to have Systemic Lupus and also Discoid Lupus at the same time. I have begun to break out with a almost round red scaly blotches. I have one on my face and one on my hand. I have tried putting lotion on them and also antibacterial creams and they will not go away.

Has anyone had these before? I have an appointment with my Dr. on Monday but was just wondering what you all thought.

Thanks,
Mary Ann

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/8/2015 9:37 AM (GMT -6)   
I get those scaley patches on my scalp and my eyebrows. I'm suppose to see a dermotologist soon to find out what's happening.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 1/8/2015 10:05 AM (GMT -6)   
Joy, I guess we are kind of in the same boat. I am hoping my doctor will send me to a dermotologist, too.
MCTD, Fibromyalgia,Pulmonary Hypertension, Pulmonary Stenosis, High Blood Pressure, IBS, Degenerative Disc Disease, Depression, Anxiety

"No matter what happens, God is in control. He is God, I am not, what a relief!"

Ashaline
Regular Member


Date Joined Oct 2014
Total Posts : 82
   Posted 1/9/2015 6:54 PM (GMT -6)   
My daughter has discoid lupus and no cream will take her rashes away except for fluocininide ointment, a heavy steroid. Her doctor said that about 10% of people with systemic lupus have discoid as well. I hope your appointments go well!

Barbara Lee
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Date Joined Sep 2003
Total Posts : 2889
   Posted 1/10/2015 1:55 AM (GMT -6)   
Hey Mary Ann:

So sorry to hear about the SLE and Discoid Lupus too. That's a real bummer and I hope they are treating it for you. I just found out this summer that I have Lupus Profundus (or Lupus Panniculitis (sp?)) This is of the skin too, according to my Dermatologist it shows that my SLE isn't quiet and I need a different treatment to get me all better.

Of course my Rheumy doesn't necessarily agree with my Dermatologist and they've been disagreeing about my changes in my skin and body. They can't even agree on which medication to give right now. Finally, though they've now agreed and I've started my new medication.

Mary Ann, I'll be praying for you and I hope that whatever medication they give you for your Discoid lupus gets better really quickly. Keep us posted on how you're doing okay. Happy New Year to you and I hope you start to feel better really soon.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 1/11/2015 4:21 PM (GMT -6)   
Thank you Ladies for the information, concern and prayers. I am seeing my primary doctor tomorrow to get a referral to the dermatologist. I will let you know how it goes.

Thanks,
Mary Ann
MCTD, Fibromyalgia,Pulmonary Hypertension, Pulmonary Stenosis, High Blood Pressure, IBS, Degenerative Disc Disease, Depression, Anxiety

"No matter what happens, God is in control. He is God, I am not, what a relief!"

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 1/12/2015 2:15 PM (GMT -6)   
Well, I went to my doctor and he said that I have excema, not Discoid Lupus. He has given me a steroid cream to use. I sure hope it helps because I am getting another one on my face. :-(

Hope you all have a good day today.

Mary Ann
MCTD, Fibromyalgia,Pulmonary Hypertension, Pulmonary Stenosis, High Blood Pressure, IBS, Degenerative Disc Disease, Depression, Anxiety

"No matter what happens, God is in control. He is God, I am not, what a relief!"

Ashaline
Regular Member


Date Joined Oct 2014
Total Posts : 82
   Posted 1/13/2015 8:03 AM (GMT -6)   
I certainly hope it is excema, but my daughter had to see several dermatologists, who also said excema, before she was diagnosed with discoid. They did a biopsy finally. So, what I would do is really keep your eye on it and see what happens. Where is your rash located? Discoid would most likely be on places in the sun most. Face, chest, arms. Oh, I just saw in your initial post your face and hand. Just keep watching and see if it happens after you've been in the sun more. And if the creams don't work because they are not strong enough, and it keeps happening, I would ask for a biopsy. Give it a little time though.

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 1/13/2015 10:29 AM (GMT -6)   
Thank you Ashaline for that Information. My doctor did say if it doesn't go away we may have to biopsy it. He mentioned skin cancer, too. So I am really hoping it goes away with the steroid cream. I will definitely be keeping an eye on it.


Mary Ann
MCTD, Fibromyalgia,Pulmonary Hypertension, Pulmonary Stenosis, High Blood Pressure, IBS, Degenerative Disc Disease, Depression, Anxiety

"No matter what happens, God is in control. He is God, I am not, what a relief!"
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