Posted 1/23/2015 3:07 PM (GMT -7)
First off, I am so sorry you have to go through all of this. There are many people on this site that will tell you (myself included) that getting the proper diagnosis can be very difficult. Trust yourself! I think I saw 5 different doctors before I finally received a diagnosis. My biggest supporter (other than my husband) was my primary care physician. She knew something was wrong but also insisted I had to have a rheumatologist to treat it. Unfortunately, there are quite a few rheumatologists practicing that ignore the whole "4 out of 11" and will not diagnose. My ANA was 1280 but I actually had 1 rheumatologist tell me that "since I could bend over and touch my toes, it could not be lupus". Left that place as quickly as I could!
So, don't give up. You know yourself better than anyone else. It may or may not be lupus, but something is going on. So maybe you could talk to your primary and explain how frustrated you are. Diagnosis or not, you need somebody to address your pain issues and help you achieve a better quality of life - for you and your little one. Good Luck!
Take care, Fran
Dx: Lupus, sjogren's, celiac, severe allergies, asthma, GERD
Daily Meds: Plaquenil, Zyrtec, Nasacort, Prozac, Ambien CR, CellCept, Zantac, Bactrim, Q-Var, Restasis, Albuterol
Daily Supplements: Calcium, B-100 Complex, Vitamin D, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Tylenal, Vicodin, Prednisone.