extreme pain and no answers

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New Member

Date Joined Jan 2015
Total Posts : 6
   Posted 1/30/2015 11:46 PM (GMT -6)   
I Am 21 years old and ive been to 4 different doctors in the past two weeks. Once my PCP then another pcp at the same office. I went to urgent care two nights ago and then with another doctor last night for two hours. I have been extremely fatigue for months and months every once in awhile I would get pains in my body...well its gotten worse and worse....my entire body feels like its being squished under something extremely heavy. I have no motivation I'm so so tired. My hands hurt when I write and when I say my entire body hurts I mean my toes my knees my hands my neck my back my head EVERYTHING. Not one doctor has given me a answer as to why or what's happening with me...I'm so.miserable and I am.in so much pain. I lay on the the floor for hours because its the most relief I can get and even that is painful. I've had so many blood tests done and now they want more and to do other testing. They gave me medication to take for muscle inflammation (steroid) but it doesn't seem to be working because yet again I was on the floor. My hands and feet keep swelling up along with the rest of my body and they get numb and tingle at times..

Does anyone have any tips for the pain? The other symptoms ( weight gain, mood swings, depression, hair loss in shower hair brush Don't bother me as much as the pain, swelling and numbness/tingling in my hands and feet. 

I am willing to try anything! I need some relief 😢

Thank you all in advance!

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 1/31/2015 9:11 AM (GMT -6)   
Since you are suspecting Fibro, Lupus, and Rheumatoid Arthritis, you should know that all 3 of these are diagnosed by and treated by a rheumatologist. I suggest finding one as soon as possible - none of these are really diseases that an ER is equipped to help you with.

I'm surprised your PCP hasn't refereed you to a rheumy before now. What does the PCP think it is, or do they think they can treat it themselves? All of these are better dealt with by a rheumy.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Jan 2015
Total Posts : 6
   Posted 1/31/2015 9:58 AM (GMT -6)   

My pcp has no idea what it is. They have used the words "I'm stumped." Which are words I did not want to hear. And they didn't even mention sending me to rheumatologist just that they wanted more testing. I feel like a project to them rather than someone in pain. I am definitely going to look for a rheumatologist myself tho! In hopes they can help!
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