Posted 2/26/2015 12:48 AM (GMT -6)
Yep, it's 1:20 am in my time zone and I'm not in bed yet. I guess that's what I get for going to bed last night at 8:00pm I felt so badly last night my legs and feet were numb and hubby did rub my back for a bit for me. I went to bed wearing flannel nightgown, a polar fleece type material robe, hubby then placed a fleece blanket over me then the top sheet, another blanket, the bedspread, and finally another fleece blanket.
I managed to sleep until 4:30 this morning w/o waking up or feeling like I was hot in any. at 4:00 am I got up and removed some blankets and my robe. I still am miserable, my legs are terrible. I canceled my PT and Therapy appointments due to the back pain and leg pain.
My Dr called and my MRI is unchanged from my latest MRI. She said that the problem can be a couple of things. 1st being steroid indued Myopathy. I've been on high dose steroids for `14 years, heck on the Feb 5th, I bent down to feed my little fur baby and pop there went a rib breaking. I didn't do anything but bend at my waist and it broke. The 2nd issues could piriformis syndrome. I know you're asking what the heck is that. All the inflammation I have may, be around my piriformis muscles (this muscle is in the center of your butt) and it's trapping my sciatica nerve.
I called my PT therapist and asked if the treat this condition and she said yes, I've been doing some of that kind of work on it already. I read that Botox can possibly help, but is it safe for patients who don't have ANY immune system. Need to look into this more I'm thinking. I told my Dr that I always swore I wouldn't live to reach the age of 50 and I'll be 50 on Saturday and that she better come up with a solution and quick for me.
My pain is so bad and now it's up in my groin. Today, I canceled all appointments and stayed off my feet I only went to the bathroom, which is only 30 feet away maybe. Trying to fee my fur baby was really tough. We spoke with our daughter on the 24th of February and she was down a bit. So, she's asked that I bake her a marble cake with chocolate frosting and bring it over on Saturday. Of course, being her Mother I'd never say NO, she's my baby girl and I can't disappoint her. Not sure how I'll manage the car ride over there. Guess, she'll be spending my 50th with me after all.
My Dr informed me that my hemoglobin is below my oncologist's threshold for me and he'll be phoning to tell me to come in for my monthly blood transfusion. She also told me they assigned a civilian female doctor to me. I will see my Dr. on Weds the 18th of March for the very last time. I suspect there will be many tears flowing that morning. Good thing I have several other appointments that day, or I'd come home and cry and cry. I'll be having surgery on my foot the following week and I'm going to miss my Dr. so much, in the 22 years hubby was on Active duty and in the 8 years he's been retired, she is the best Doctor I've had period. Now, she did say my new Dr is a good fit and it will be different cause it's not her, but she has confidence in this Dr.
So that's the update for me, Chart, Diane, UA, David, and Joy thank you all for the early birthday wishes. It's always nice to know others think of you on your birthdays. My friend here went way over board and bought me a bunch of Vera Bradley stuff. Plus $25 for a birthday cake and ice cream, as she won't bake one, (she's sick with a respiratory infection) she'd be upset if she made me sick. She asked my hubby what he was going to do for my birth and he was like well I'm not sure, I might not even mention it. Not sure how she feels about turning 50. So, I'm thinking she went over board thinking he's not going to do anything at all for me. Time will only tell. He's forgotten before like 2 times and comes the next day I'm usually like lets not and say we did.
You all take care and I hope that you're all doing better than I am. Because I'm miserable with a capital M.