Posted 2/15/2015 8:45 AM (GMT -7)
I have a lot going on, and my PCP has suggested that I may have lupus. She ordered some blood tests and I am waiting on results from those. In the meantime, I am going a little crazy waiting to find out. I have had so many problems for so long, that it would almost be a relief to have a diagnosis.
I don't even know how to describe my symptoms anymore because so many of them have become "normal" for me, and some have come and gone, and there is overlap (does stress cause GERD or does GERD cause stress?)
Here's what I've got:
-I am cold all the time. My hands and feet go numb, my nails turn purple. Everyone around me is fine, and I am shivering. If I happen to be a comfortable temperature, then I know that it must be hot wherever I am. Winter is awful. I have to take hot showers every night just to get my blood flowing and feel normal again.
-I am tired all the time. I struggle with whether this is health related or normal. I have two kids and a demanding career. But I could sleep 10-12 hours a night and still feel tired all day. Have been tested for narcolepsy - negative.
-Light-headed, dizzy spells pretty frequently. I have always thought this was low blood sugar related. Sometimes I feel that way, eat a small piece of chocolate, and I am fine. Other times the feeling comes back over and over through the course of several days.
-Achiness and joint pain
-General ill-feeling - some weekends I crash in bed Friday evening and stay all weekend. I will have a slight fever (99-ish) and just feel gross. I always assume it is some sort of bug, but no one else in my hosuehold ever seems to catch it.... Happens to me maybe once a month?
-Blotchy skin that reacts badly to sun - I think I have the butterfly rash, although it is more like butterfly shaped redness than a bumpy rash.
-Awful GERD. I have been treating for this for 10+ years. Meds, EGDs, signs of Barrett's.
-Weight fluctuations - overall I am very petite. I am 5'1". For awhile my GERD affected my ability to eat and I got down to 95 pounds. Now, 2 years later, my GERD is somewhat more under control, and I am 20 pounds heavier. I don't really know if it is because my GERD has improved, or if my body is being weird. I don't feel like I really eat all that much more now than I used to.
-IBS- mostly C, but occasionally D
-Anxiety and panic attacks - awful, all the time
-Recently I have started craving salt like crazy.
Of all my problems, the worst are the constant coldness, the fatigue, and the GERD. I'm not convinced that I have lupus, but I am anxiously waiting for results from my PCP. I don't even know why I am posting here other than I am frustrated and anxious to find out why I feel this way all the time. I feel like I live in a world where everyone is tired, everyone has headaches, etc, but then I wonder if I am like everyone else or if I do have a medical problem that is contributing to everything.
What if my PCP calls and says blood test results are normal? I guess that is my greatest fear because at least a diagnosis would give me something to work towards.