Referred to a rheumatologist

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PBradley11
New Member


Date Joined Feb 2015
Total Posts : 2
   Posted 2/24/2015 10:32 PM (GMT -6)   
Hi all! I'll try to keep this brief and to the point and I will appreciate any feedback :)

Over the last couple of years, I have been experiencing unexplained chest pain. Numerous trips to the ER fearing I was having a heart attack. I've been diagnosed with pluerisy, atypical chest pain, chest wall pain, fibromyalgia, and I know it has appeared as if it was all in my head. In addition to the chest pain, I've had severe lower back pain, near my kidneys. But, there's never anything wrong with them. I go through periods when I am perfectly fine on top of the world feeling good, then periods when I can't even get out of bed.

So, a few weeks ago the pain in my chest was horrific. I was so scared something was really wrong because nothing was alleviating the pain. I went to the emergency room, again, and something in my bloodwork prompted the doctor to urge me to see my doctor. I saw the doctor who ordered a whole battery of tests, a ct scan for pulmonary embolism and a echocardiogram. Those tests were fine, and the labs were:

WBC: 11.3 (H)
ANA: 54.37, 1:40 Titer
dsDNA: 32 (Borderline)
CRP: 0.7 (H)
Sed rate: 37 (H)
Neutrophils: 6.85 (H)
Eosinophils: . 86 (H)
Alkaline phosphatase: 117 (H)

So, I looked some stuff up and I keep coming to autoimmune, specifically Lupus.

I have appointment with rheumatologist in a few weeks. I guess I want some feedback before then on how concerned I should be, if these results are "normal" for Lupus or other autoimmune. Or if maybe I am just sick with a viral infection or something.

~Worried

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/25/2015 3:41 AM (GMT -6)   
Your blood work does show something hinky going on.
the rheumatologist will use the 11 indicators list to determine if you have lupus or not. You can find the list in the thread lupus 101. You need to meet at least 4 of the 11 indicators to be diagnosed with it.

Best of luck and I hope you don't have this stuff. We're here for you.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

PBradley11
New Member


Date Joined Feb 2015
Total Posts : 2
   Posted 2/25/2015 10:36 AM (GMT -6)   
Thank you for your response :)

I have looked over the criteria, and here's what I can see in myself, and my past medical issues over the last several years.

Positive ANA, positive dsDNA, pluerisy, nose ulcers, protein in urine, rash & hives, Factor II blood disorder, depression, anxiety, mood disorder, migraines have all been documented. Now symptoms, severe joint pain undiagnosed, severe fatigue, sensitive to sun and bright lights (nausea & migraines), irregular menstrual cycle for past 3 years, chest pain, irregular rhythm, low grade fever, gastro issues since childhood.

I am very interested to see what of these symptoms could be related, if they are and if I'll finally have an answer to a connection. Rather than continuing to feel as if I am losing my mind, getting old, being lazy & unmotivated...I would like to be relieved of the guilt I've felt for years over not being "normal" :(

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 2/25/2015 12:22 PM (GMT -6)   
One thing I have found is that it is important to just present the facts (the symptoms) to the Drs, and NOT to mention what we think it might be.

It's like presenting a jungle picture to someone. If you just tell them to find the animals, they find all kinds of things. But if you tell them to look for elephants, they miss all other animals! You want the Dr's to look with as open a mind as possible.

Regardless of what the Drs find, I assure you that you are not losing your mind! While you may be getting old (we can't stop that!) and you may even be unmotivated, beating yourself up for some perceived laziness is NOT worthwhile. And no way is stopping because of pain the same as laziness!!!!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

zulily
Regular Member


Date Joined Jan 2015
Total Posts : 49
   Posted 2/26/2015 12:04 AM (GMT -6)   
My new rheumy made me feel better and justified about my fatigue and pain. I was starting to think I was turning into a hypochondriac. He assured me that blood work doesn't lie and there is something brewing we just need to find out what.
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