Lupus is NOT a woman,s disease but it is much more common with women in their child bearing years. I am an old guy and got lupus along with polymyositis when I was in my 60s. Lupus was very severe: arthritis everywhere, hit my kidneys and GI tract, and cognitive impairment. Polymyositis hit a few months later and almost did me in....I lost 40 lbs of muscle in a week and when everything was finally brought under control I was quadriplegic with a feeding tube. Many months in hospitals and I was able to recover physically and continued on my own. Within 3 years I was able to return to my active life again of skiing, golfing and more.
Lupus is a treatable disease but every case is different and presents, responds to treatment and progresses uniquely. What treatment works for one does not for another so more severe, chronic cases become a 1 patient medical experiment to find the best treatment. It is important to have a doctor experienced treating lupus and also a good idea to get a 2nd or even 3rd opinion for treatment. There are many treatment options for lupus beyond Imuran and plaquinel.
both my diseases were in remission for almost 9 years but lupus has crept back and went after my liver and blood again. Fortunately, I have felt ok but I am on a short lease with my team of doctors and might have to start taking controlling meds again. Have been off all of them for the past 4+ years. No big deal if it keeps me going. In the meantime even though I am in my mid 70s I still ski, golf and hike. Life is different but good.
If you husband wants to contact me directly let me know and I will provide my email address. Lupus is not fun but for most of us, even with severe cases, life can go on. Polymyositis is little less complicated but more devastating because it can completely disable you and actually destroy muscles cells. Not fun and I was lucky to have both survived and made a physical recovery.
Best of luck,
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.
Remain Optimistic and you can overcome.