PLease help me!! is this Lupus?????

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kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/13/2015 2:54 PM (GMT -6)   
Hell guys I really need some help here and any advice you can give will help me out greatly.
I am a 33 Female with no children, I di however have RADS which is similar to asthma but I’ve only had 4 episodes in my life and the last on was 3 years ago. about a month ago I decided to become Vegan. No meat, no eggs no dairy. The first week was easy with no craving and my mind felt clear. However physically I felt run down. I noticed that I wasn’t able to complete my normal exercise routines which included walking 5 miles. I was exhausted after about 1 ½. So I just stopped going all together. BY day 6 I was experiencing mild chest pain and light headedness I also work up with racing heart for no reason but was able to fall back asleep after about an hour. I thought lack of protein was the answer, so I started drinking Rice Protein with bananas for breakfast. Things got better but then I kept feeling like I was coming down with a cold. By week 3 I noticed a small white patch on my left tonsil. I went to my local walk in clinic. They said I had mild fever (99) and low but normal blood pressure 107/11. I got a strep test that came back negative. The Dr said the infection could be bacterial or viral so he gave my two prescriptions. While I was there I also told him that I had itchy ears , which I had- had for years. He said I had an outer ear infection and prescribed some drops for me. I went home and immediately took the zpak. After day 5 on zpak my sore throat was gone and I was 80 normal. I didn’t bother with the viral medication at all, Instead a waited a day and began taking the drops for my ears.
Day one on the drops was really bad I had serve shortness of breath after taking them but my ears felt better so day two I only took one dose. That night I woke up with a racing heart and a feeling like I was going to pass out. It was terrifying I thought I was having heart failure or a heart attack. I went to the ER they did a CBC and they said I was fine and that it could have been a panic attack. I had never had anything like that happen to me before but I took then at their word. Two days later I was back in the ER with chest palpations and shortness of breath. This time they did even more blood work and a stand up xray that looked at the front and side of my heart. The results were negative. The Dr said nothing was wrong and sent me home with the same pain I came in there with. He suggested that it could be mirovalve prolapse and that I get an out patient echo.


The next three days were hell. My heart raced all the, especially when I tried to lie down. I was filled with fear and the chest pain was now accompanied by arm numbness and back pain. On day four I went back to the ER in the around midnight. It was a different hospital. They took more blood ran more test. Finally tested to see if Id had a heart attack. Nothing. Every test showed I was fine by 4am I was back home. Thinking maybe I had a low immunse sytem I took some zinc. I felt like I was going to have a heart attack again. Heart racing, dizzy, shaking. So by 11am that same day I was back at the ER. While driving I was felling light headed I almost passed out behind the wheel, By the time I got to the ER I was actually having a full blow panic attack. The nurse said she could tell by my hands. I was crying and I couldn’t catch my breath so again I was told it was just panic. I tried to explain that YES I was panicked but that the reason for coming in was that I was having shortness of breath I couldn’t stop shaking and I felt like I was going to pass out behind the wheel. That would make anyone panic. They calmed me down using breathing techniques and then I left. That night was the worst. I seriously felt like I was having a heart attack so I took some Bayer aspirin. I also took the “panic” meds the Dr in the ER prescribed me. I slept for 12hrs straight. When I woke up I was still in pain. That day a nurse from the ER called to check on me. I told her nothing had changed so she said that I should come in and get admitted to the hospital. I did.


I checked in around 3pm.All day and night they took my blood and blood pressure. They did more xrays and gave my an ehco to look for the micrvalve prolapse. They also gave me a Nitrous pill. They offered pain meds but I refused them. I didn’t want the Dr to ask me about my pain level while Im all doped up. The nitris actually helped, I felt like I was getting oxygen for the first time in a week. My heart still raced and woke me up every time I dosed off. After 24hrs and all that work they hadn’t found anything. The cardiologist said I was fine and the Dr said my pain was muscular skeletal. I was shocked and still felt weak and at that point I had developed this dry hacking cough. I thought it was from the hospital air. However I took the Drs at their word and went home. I decided to sleep on the opposite side as not to further damage my muscles on my left side. The next day I had Jaw pain and arm numbness and the cough had worsened. At my wits end I took an iron supplement. It was great, I shook and shook like a leaf on a tree the same way I was in the hospital after the nitris. I felt like I was getting oxygen again. I was finally able to sleep without a racing heart.


The pain kept alternating. Jaw,chest, back, arm tingling, arm numbness. So I started taking honey. Afterall I had been assured by 10 diffent Drs that I was ok and that whatever I had was not life threatening. A day later I felt like there were bricks on my chest and that I was breathing thru a straw. So back to a different ER. They looked at my records, gave me an EKG, told my I was fine and that I should start using my inhaler. But they gave me a referral to a cardiologist to be on the safe side. So I made the appointment I had to wait a week in the mean time the honey really helped me and I had no racing heart whatsoever and it really helped with the coughing as well. Finally I was able to see the cardiologist. I did a stress test. I thought I was going to pass out I was so out of breath. However, they said I passed with flying colors. After I left I’ve had chest back and Jaw pain. Pain that I hadn’t had in a week. And now the honey doesn’t seem to help my cough as much. This was two days ago. I have been in pain and nausea every since I left the Dr. I have been having spells of lightheadedness and constant chest pain and cough. This morning my arm was numb for at least to hours. Does anyone know what this could be. DO I need to see a pulmonologist or a psychologist.??? Is this walking pneumonia or pleracy or what. PLEASE HELP!


about me:
Non drinker non smoker drug free. Before this I hadn’t had a cold in years. I have no preexisting conditions besides RADS. I don’t work but I do live an active lifestyle ei rebounding 3x’s per week and walking 5 miles every other day. Also my diet was the Mcdoughal diet. I was high card low fat vegan for 1 month and a week. Before that ate healthy but I did eat meat and now I eat meat again.
PLEASE PLEASE HELP ME!!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/13/2015 4:05 PM (GMT -6)   
Are you on maintenance meds for your RADS?

Did they do a PFT at the hospital?

You maybe having a bad RADS attack.

See a pulmonary doctor asap.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

zasz
Regular Member


Date Joined Feb 2015
Total Posts : 51
   Posted 3/13/2015 4:40 PM (GMT -6)   
sounds like RADS attack, ASHTMA is basically a more severe form of rad, you might want to double check if you have ashtma.

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/13/2015 4:41 PM (GMT -6)   
Thank you for your response.

Yes I always have my inhaler on hand and I get the prescription renewed every six months even though I haven't had an attack since 2010. Its Ventolin.

NO they didn't give me a PFT test, the whole focus was on my heart. It was only after I saw the cardiologist and took the stress test that someone (the nurse) even suggested the problem might be in my lungs.

They did check for blood clots via xray and blood tests.

Thank you so much for sharing you opinion with me Ill take all the advice I can get. :)

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/13/2015 4:51 PM (GMT -6)   
"sounds like RADS attack, ASHTMA is basically a more severe form of rad, you might want to double check if you have ashtma."

Thanks zasz,

It didn't feel like a RADS attack but perhaps my condition has somehow advanced to asthma.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/13/2015 5:24 PM (GMT -6)   
No, this isn't anything like Lupus.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/13/2015 5:53 PM (GMT -6)   
"No, this isn't anything like Lupus."

Thanks you Lynnwood, I only suspected it because of my family history. My aunt went undiagnosed for years. She died from Lupus in 1998@ age 44. I was still a kid but I remember the family talking about all the Drs she saw before anyone had a clue of what was happening to her.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 3/13/2015 6:11 PM (GMT -6)   
I'm thinking no matter what the underlying cause is that stress likely isn't helping any. It's hard not to panic but it only makes things worse. Do you have any stress busting strategies or coping mechanisms to help you relax and deal with worry?

Chest pain can be very scary, ive been through it too. I hope you find an answer soon and feel better.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/15/2015 5:47 AM (GMT -6)   
Thank you acquiesce

Before all this I used to meditate every morning and do some deep stretches then exercise by doing some rebounding for an hour or walking/running. That was my routine.

But all that went out the window when I all these symptoms started. In a crisis I've only been able to pray a little. And its been almost impossible to quiet my mind when I'm having an episode even though I know its the right thing to do. I haven't even tried to meditate in weeks. Maybe Ill try it today :)

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/15/2015 5:59 AM (GMT -6)   
PROGRESS REPORT:

Thanks to the advice I received on this forum I started taking my inhaler and It has really helped. I am able to breath freely 4-6hrs at a time. I was reluctant to start using it because it I didn't fee like I was having an attack, however it has worked. I have an apt with my primary on Monday (that's the earliest I could see her since all this happened) Now that I have proof its my lungs (because the inhaler reduced my symptoms) I hope that she can figure all this out or send me to a pulmonologist.
I will also be looking for a good therapist and a allergist.

Thanks for all your good advice , when I leave the Dr on Monday I will post her findings on this forum.

Becky20
Regular Member


Date Joined May 2014
Total Posts : 68
   Posted 3/15/2015 8:34 AM (GMT -6)   
I noticed that you said you had a radical change in your diet before the onset of your symptoms. I think this is something you should discuss with your PCP to make sure you are not also malnourished on any important nutrients. about 10yrs ago I was dangerously low on potassium and it seemed similar to some of the symptoms you described. Please make sure to mention the supplements you are taking as well.

Glad to hear you are doing better, good luck with the dr!
Diagnosed with SLE lupus October 2014.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 3/15/2015 12:45 PM (GMT -6)   
I have had an er visit that was due to low potassium as well Becky, it can really mess you up! I also have asthma and sometimes it's really hard to tell where the discomfort is coming from.

Good luck Kamden :)
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

angelamom
New Member


Date Joined Mar 2015
Total Posts : 4
   Posted 3/15/2015 9:44 PM (GMT -6)   
The symptoms actually were similar to smething one of my kids went through two years ago -- and it turned out to be Lyme. It took 2 years and all tests looked fine. Finally got it on a four month culture from Advanaced Labs in PA. I am not implying this - but maybe an Igenex test is in order.

Symptoms started after your change in diet? This could be an old infection burried that came up when on a cleansing type diet -- or a possibility is you may have some genetics (suggest to do the 23andme test and get it put through anallysis engine) -- that give you higher histamine and lower methylation -- and you do not do well with folic acid or a high vegetable diet.

If you have low methylation (seen as high histamine) - in order to better balance your methylation you would need a more meat based diet. Also in case you were to have Lyme - as the co infection Bartonella (which, along with Babesia, often accompanies Lyme) thrives on the amino acid L-arginine - which is primarily in meat. You may have had a sudden imbalance of amino acids, enzymes and hence neurotranmsitters. There is also a blood heme synthesis disorder that Lyme seems to generate called Pyrroluria, which can result in loss of zinc and B6 - and this raises anxiety ten fold.

If you suddenly have no arginine and also start a lot of folic acid (in vegetables) - it could have left you very under methylated and any infection taking hold. Panic attacks are common with many conditions - related to serotonen issues. They are not in your head - they have biochemical roots. Strange bone pains or sore bottom of the feet upon getting up in the morning are characteristic of Bartonnela. Pains that attack different parts of the body in no preditable manner - are signs of Lyme. Night sweats are a sign of Babesia.

Anyway - many auto immune conditions are in fact generated from intracelular infections - so if there were any of this - I would still try and dig down and rule out an underlying infection. Six months of herbs (Cowden Protocol) - and you can avoid years of problems, if that is what it is, and if you address it early.

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/23/2015 8:08 PM (GMT -6)   
Well I went to my primary on Monday and things went well. She was kind and very interested in all the events of the last month. She prescribed me a new steroid inhaler (Pulmicort). But she didn’t think that my asthma was really asthma. I wasn’t “weezing” and she checked my pulse and said that there weren’t any blood clots. She also checked my thyroid. Since she couldn’t really find anything she went back to my panic attacks. She said that she feels like that’s what it is. And that it is possible that I was also having an allergy that triggered asthma symptoms at the same time. She prescribed me 20mg of Citalopram of which I am to cut in half for the first week then take the whole dose the next week. She said if that works all my symptoms should disappear or be greatly diminished. If not, because she believes so strongly its panic, she will up the dosage.


The steroid inhaler made me feel weird I felt like it was making my tongue and throat swell so I stopped taking it. I found that my symptoms did diminish when taking Claritin so I’ve been doing that. Today I went to my local clinic for what I thought was a spider bite (it wasn’t) but while I was there I made it count and had a PFT (just to make sure my lungs are functioning fine) – they are. And I’m all set to have an MRI for my arm numbness. The Dr there believes that I have a pinched nerve in my back causing my arm pain and numbness. But he also made sure to tell me that it too could just be anxiety or muscular skeletal pain that may pass on its own.


So at this point I’m thinking it may have ALL been anxiety from the start. My heart is ok my lungs are ok and there are no clots. My thyroid is also ok. For the last week I have had allot of cheek and jaw pain but I believe that it’s from grinding my teeth while I sleep from all the stress. If it continues I will go to the dentist just to make sure. I’m very happy to “basically” have a clean bill of health. As for my cough and the feeling of being short of breath, well the Dr said viral bronchitis. He also mentioned walking pneumonia but said the chances were slight. He leaned toward viral bronchitis because it’s been going around. There are no meds for either. So I will be self-treating by taking zinc or something to boost my immune system.

My plan now is to continue to take Claritin (which is really the cheap Wal-itin from Walgreens) and begin the Citalopram by next week. I’m waiting because I really want to work on getting rid of this cough first. I am also looking for a good therapist because I don’t want to have any more episodes.

I really would like to say thank you to everyone who read and responded to me original post. I felt so terrified and alone at the time I wrote it and I really appreciate you guys for taking time out to give me your opinions and some direction. You’ll never know how thankful I am just to have someone listen.<3

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/23/2015 8:14 PM (GMT -6)   
Thanks Becky20 & acquiesce (:

I eat about 2 bananas for breakfast each day but potassium is the only thing I haven't gotten checked (I think). I will try to get that tested as soon as I can just to make sure I didn't overlook anything.

kamden81
New Member


Date Joined Mar 2015
Total Posts : 16
   Posted 3/23/2015 8:21 PM (GMT -6)   
Thanks for the response angelamom

I really never thought abut Lyme disease but Ill do some research.
I do agree with you about my eating, I don't think that I'm cut out for a plant based diet. Once my health is fully restored I'm thinking Pescetarian or Ovo-Lacto. Even though all the Drs said the diet wasn't hurting me, its hard to ignore the timing of all my health problems. Even now that I'm pretty sure its mental I still fear going Vegan again. Now it just seems like a dangerous thing to do.
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