A Lupus Thing?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Mar 2015
Total Posts : 13
   Posted Yesterday 4:46 PM (GMT -6)   
Hey there -

Just wanted to share my symptoms real quick and see if anyone can relate - anyone who has Lupus that is.

Or maybe Lyme? I don't know. I recently got my Lyme test - just an ELISA and Western blot and it all "looked normal" - so I'm moving down the line of diagnostics...

I was diagnosed with MS when I was 19. I'm 26 now. Not on any medications.

My current symptoms are: Pain / pressure in my upper abdominal quadrants. It feels like someone is squeezing my liver / gallbladder / kidneys / spleen. Not sure exactly which organs are affected, this may be from inflammation? Not sure. They couldn't find signs of an infection in my urine, although my ketone levels were high (I was dehydrated when getting my blood drawn). Blood tests appear in the norm. I have some sore muscle spots on my legs, and my arm bones are sore. I also have a low Vitamin D count - 16 (norm is 30-100).

First ANA blood test showed the common Homogeneous 1:320 titer antibody.

Otherwise, I feel great. No rashes, no photosensitivity (I feel amazing out in sunlight), no fatigue, no nausea, no bowel issues, no bleeding, etc. Not sure what's going on - doctors just keep running blood tests and seem pretty lax about it. I've decided not to freak out any longer, all I can do is wait. Just hope none of my organs are failing or anything like that.

Thanks for your time, thanks for reading. Eventually I'll get an "IGeneX" lab test to check again for lyme disease / co-infections, but I do not have the finances. So many people think I have Lupus.

Forum Moderator

Date Joined May 2005
Total Posts : 7667
   Posted Yesterday 5:17 PM (GMT -6)   
Have you read about the 11 symptoms used in diagnosing Lupus? Check out the 'Diagnosing Lupus' link below.

It doesn't sound to me like you really match the symptoms -- have you tried a Vit D supplement and making sure you are drinking enough water?

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Mar 2015
Total Posts : 13
   Posted Yesterday 5:30 PM (GMT -6)   
Yea, I checked that very site... I have a FEW symptoms but it just... doesn't feel like the right diagnosis.

I mean tbh, I think I have Lyme or something like it. Won't find out for a long time, just gotta kinda survive and monitor my organs. I guess.

Thank you for your post.
"The meaning of life is to give life meaning"
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, March 17, 2018 12:51 AM (GMT -6)
There are a total of 2,940,484 posts in 322,665 threads.
View Active Threads

Who's Online
This forum has 161097 registered members. Please welcome our newest member, JacketJack.
274 Guest(s), 4 Registered Member(s) are currently online.  Details
alunke82, Girlie, sopmac, CatLady18