Hey there -
Just wanted to share my symptoms real quick and see if anyone can relate - anyone who has Lupus that is.
Or maybe Lyme? I don't know. I recently got my Lyme test - just an ELISA and Western blot and it all "looked normal" - so I'm moving down the line of diagnostics...
I was diagnosed with MS when I was 19. I'm 26 now. Not on any medications.
My current symptoms are: Pain / pressure in my upper abdominal quadrants. It feels like someone is squeezing my liver / gallbladder / kidneys / spleen. Not sure exactly which organs are affected, this may be from inflammation? Not sure. They couldn't find signs of an infection in my urine, although my ketone levels were high (I was dehydrated when getting my blood drawn). Blood tests appear in the norm. I have some sore muscle spots on my legs, and my arm bones are sore. I also have a low Vitamin D count - 16 (norm is 30-100).
First ANA blood test showed the common Homogeneous 1:320 titer antibody.
Otherwise, I feel great. No rashes, no photosensitivity (I feel amazing out in sunlight), no fatigue, no nausea, no bowel issues, no bleeding, etc. Not sure what's going on - doctors just keep running blood tests and seem pretty lax about it. I've decided not to freak out any longer, all I can do is wait. Just hope none of my organs are failing or anything like that.
Thanks for your time, thanks for reading. Eventually I'll get an "IGeneX" lab test to check again for lyme disease / co-infections, but I do not have the finances. So many people think I have Lupus.