Told it is all in my head today...

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dashlink675
Regular Member


Date Joined Nov 2013
Total Posts : 21
   Posted 3/25/2015 3:44 PM (GMT -6)   
Hi Everyone,

My primary care doctor called me in today to go over some blood work. I was worried something was really wrong but it turned out my vitamin D was just high. My doctor then proceeded to tell me that since my inflammation markers weren't high there was nothing indicative of an inflammatory disease, and no explanation for my symptoms so it was likely all in my head and I should consider anti depressants.

I was diagnosed with UCTD in October by a rheumatologist and am now on prednisone and plaquenil, which has really helped but I still have flares. I was only going to the primary care doctor for a physical so this caught me completely off guard. It has taken me years to finally get diagnosed and treated properly, how can doctors be so dismissive and ignorant? Even though I still trust the rheumatologist it is still so hard to be told I'm essentially crazy.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/25/2015 4:36 PM (GMT -6)   
Find another primary doctor. He was out of line in that comment. A primary doctor doesn't have the specialized training that a rheumatologist has in diagnosing autoimmune diseases.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 3/25/2015 6:41 PM (GMT -6)   
Yup, I agree with Joy (couchtater). The primary has no clue what the dickens he is talking about, he is not trained in auto immune diseases. Your inflammatory markers are probably not high because they are being controlled by the medication your rheumy is giving you!!!!

Ask your rheumy who he would recommend for a primary Dr!!!

Also, if you are still having flares there is a 3rd tier of treatment using one of several alternatives - Imuran, Cellcept, and MTX come to mind. And if none of those 3 help, there is a 4th tier of even more serious meds!!!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

dashlink675
Regular Member


Date Joined Nov 2013
Total Posts : 21
   Posted 3/26/2015 7:02 AM (GMT -6)   
Thanks guys! Needed the extra reassurance that I DO know what is happening in my own body.

Also, my Rheumy wants me to start on either Arava or MTX soon to get the flares under control and get me off of prednisone, I'm just trying to decide which is best!

Becky20
Regular Member


Date Joined May 2014
Total Posts : 68
   Posted 3/26/2015 2:37 PM (GMT -6)   
I third what couchtater said. Some dr's are heartless and/or only in it for the money. Do some dr's get commission for prescribing name brand medications like some antidepressants or what.
Diagnosed with SLE lupus October 2014.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/26/2015 11:40 PM (GMT -6)   
I take Arava. I couldn't take MTX because I was having a bad reaction to it. It seems to be doing okay with me, no tummy troubles. I'm still in the build up phase of it so there's still some pains going on, but they're milder.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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