Posted 4/8/2015 10:09 PM (GMT -8)
I'm so sorry to hear about everything that's going on with you. You have every right to vent and be upset. It sounds like you're getting the "standard" run around with the Dr's. I went thru pure you know what trying to get my DX.
I had Rheumatic Fever at age 17 and I believe (so do my docs) that this is what set off my lupus. However, I didn't get an official DX and start treatment for 13 years. It took them that long to agree that's what I had. Even now, I'm a round peg in a square box. I don't fit the Lupus DX perfectly but I don't fit anything else, so they say it's lupus. I've go so many other issues now with it that I'm so complex my doctors spend all their time reading text books trying to figure it all out.
Lupus can cause lesions on the brain, but the question I'd ask is are you showing other neurological issues? Sounds like you'll need to be seen and I'd push them to see you ASAP. Any worrying that you're doing isn't helping with whats going on with you.
My skin biopsy just came back for vasculititis and we are unable to prove if it's systemic or not. They believe it's in my lungs and heart but I'm way to sick for them to attempt any type of a biopsy. So for now I'll just be treated for the condition, not that they could ignore it as it's all over my skin now.
I hope that you get some answer really soon, and hang in there come and vent whenever you need to.