Have had high liver enzymes for the last 10 or more years and now have tested positive for ANA

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mnkshow
New Member


Date Joined Apr 2015
Total Posts : 2
   Posted 4/13/2015 5:27 PM (GMT -6)   
I assume i dont have lupus as my skin is fine and doctor didnt seem worried about that...

I am 22 years young and mother of two wonderful kids.
since i was 12-13 years old i have ALWAYS had high liver function not just "living with high liver function" actually like 3-4 times the "high" mark. so extremely high.

http://www.healingwell.com/community/emoticons/sad.gif

I am pretty sure that this is the first time i have been tested for autoimmunity and my "ana" test came back positive...the nurse told me so im still waiting for the doctor to call but in the mean time i obviously cant sit back and relax until he calls...nope! I am sure im dying and i am going to leave my sweet children alone in this world without me...that sounds terrible i know but thats all i can think about...

I have basically been tested for ANY and EVERYTHING possible and i would assume that in 10 years of having all this stuff going on that if it were cancer i would have been really sick by now and other things would be showing up on my metabolic panels.

http://www.healingwell.com/community/emoticons/nono.gif

I have had ultrasounds on my liver and they came back normal.
I am scheduled to have another ultrasound this month and also a biopsy the same time.
I know this is going to all take sometime but has anyone else been through this?? cause i know i cant be the only one...I just am at a loss...after 10 years and countless doctors and blood test i just am in so much need of some good news?? ANYONE BEEN THROUGH THIS?????

THANKS IN ADVANCE.

-MNKSHOW nono nono nono nono

Post Edited (mnkshow) : 4/13/2015 5:30:26 PM (GMT-6)


Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 4/13/2015 6:07 PM (GMT -6)   
An ANA test can be positive in a normal, healthy person. I don't think you need to start worrying about Lupus - it is diagnosed by having at least 4 of 11 markers and you've only mentioned one.

You probably have been tested for auto-immune diseases but just don't know it -- because there is no ONE DIRECT test. Usually they notice because the inflammation markers (part of the regular CBC labs) come back elevated.

I can't think of any liver diseases offhand other than hepatitis, and I bet you've been tested for that multiple times.

Hang in there,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

mnkshow
New Member


Date Joined Apr 2015
Total Posts : 2
   Posted 4/13/2015 6:30 PM (GMT -6)   
i dont have lupus...i just couldnt find a place to enter this post besides this...its definitely not hepatitis either. but the doctor is SURE its something and whatever it is he doesnt think its good.

just is such a scary things to think about .

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 4/13/2015 7:14 PM (GMT -6)   
We're here to hold your hand!

Just try to keep focused on the things that are happening around you today, and don't let thoughts of tomorrow or the future scare you from enjoying today.

It's actually a good thing that the Dr is concerned, that means there is more of a chance that they'll figure it out - can't fix it till then.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 4/14/2015 4:30 PM (GMT -6)   
Lupus can cause the symptoms you have with elevated numbers. I am going through that over the past year and had a liver biopsy done last fall that confirmed it was most likely lupus causing the problem. As mysteriously as my numbers skyrocketed they went back to normal within a few months but other symptoms did not go away like low platelets and wbc so lupus is still lurking in the background.

Hepatitis merely means liver inflammation and does not impart a cause. Most immediately think hep a, b or c but there are a number of diseases and conditions and drugs that can cause hepatitis. I went through many, many rounds of testing last year to eliminate possible causes including TB before my hepatologist would order a biopsy.

I would think that your doctor would want to eliminate other causes before considering treatment or a biopsy. Lupus can "lurk" with none of the clinical symptoms for years (15 years for me) and therefore be almost impossible to diagnose. If you doctor decided to treat the inflammation and it responded to prednisone and/or azathioprine (the two most common drugs used to treat autoimmune hepatitis) then it would be likely you have some sort of autoimmune condition like lupus. I recommend that you see a liver specialist who is familiar with autoimmune hepatitis since it is not good to have such elevated numbers.

http://www.patient.co.uk/doctor/autoimmune-hepatitis-pro

In addition to lupus I have polymyositis which is a rare muscle disease. When it kicked in full force 10 years ago I lost 40 lbs of muscle in a week and that gave me autoimmune hepatitis (different from what happened last year) and I almost died until the right treatment (IVIG) was used. Prednisone didn't help. Fortunately, the biopsy done in October showed that despite the 2 rounds of hepatitis my liver was actually pretty healthy for an old guy with a bunch of autoimmune problems. This just illustrates how complicated our bodies are and a given symptom like hepatitis can be caused by a number of things.

Hope you can get some answers. Liver problems are scary and should not be ignored.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 4/14/2015 4:45 PM (GMT -6)   
Also, not every person with lupus has skin problems. I had none until 2 years ago and yet had a very severe case of lupus.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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