Intro and looking for advice

Can you relate? Fl pain torture?
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Have you experienced these probs? Is Fl the worst? - 0.0%
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Any suggestions? What can I do? - 0.0%
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Do I need to leave Fl? - 0.0%

 
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Miseryflorida
New Member


Date Joined Apr 2015
Total Posts : 3
   Posted 4/20/2015 9:37 AM (GMT -6)   
I started posting here last night. I'm really impressed by the warmth and kindness shown to all. This is my first ever site like this. Let me know if there are any mistakes or goofs.
My bkgrnd:
Joint pains, positive Ana started in my teens. Quite a few very good years. Then, lupus and ra hit like a tsunami. Diagnosed with both illnesses in 2000. Have other probs--osteoporosis, smog tens,etc. Moved to Fl beginning of this past winter after helping my beloved husband. He fought cancer for eight years, beat it only to die horribly of ALS (Lou Gehrigs Disease).
I thought that being totally housebound for a long winter would be too depressing. Looking back, it would have been EASY compared to living sans any pain meds or meds for sleep. Now, I'm in unrelenting, horrific pain, insomnia and am developing anxiety. The anxiety is new for me--but not a surprise. How else should one react to the "Fl treatment" of no pain meds for anyone. Everyone here is thought to be a druggie if they need, ask about or question a doctor regarding pain relief. By the way, I'm on social security disability and long term disability, had the same doctors up north for 15 yrs. they even sent all my records down here. My doctors up north cannot understand why I'm having any trouble. Neither can I. It looks as if I need to move to another state. Also, I must get it together since I have an adult disabled daughter. She's reacting to my stress , depression and anxiety. Help! Thanks.

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 4/20/2015 11:50 AM (GMT -6)   
Unfortunately the rules have changed in most states making it difficult to get pain meds, if you do you have to get a new script every 30 days! Having the same docs for over 7 years, they know I am not looking for drugs, just relief! Maybe visit a pain clinic in FL and see if you can get some help from them! I wish it was easier! I would also consider finding another set of doctors. A good primary care physician and a good rheumatologist if you feel yours are unable to help you! Call the lupus foundation in FL and have them recommend a doctor who spealizes in treatment of lupus!
Amy
Lupus Moderater
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