my four year old have lupus?

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elbieta
New Member


Date Joined Apr 2015
Total Posts : 2
   Posted 4/22/2015 12:08 PM (GMT -6)   
Hi!

I am trying to make some sense of her lab work, while waiting to get in to the see Rheum. So far her anti-dsDNA has come back elevated, twice. First time was 472, second time at 573 (normal range is at or below 200). Her CK level is elevated in the 700's (normal at or below 200). Her Creatinine level is below normal, low. Complement Total CH50 is elevated, while here C3/C4 were in normal range. Does anyone have any insight of what we could be dealing with? What brought us into the office originally was she had a fever for four days right during Easter, after the fever broke, the following day she wouldn't walk. She was in pain behind her knees. She has complained of pain in her thighs, knees, forearms, headaches, feels dizzy sometimes. Thank you!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/22/2015 3:20 PM (GMT -6)   
The blood work sounds like she has some inflammation going on, but I'm not a doctor.

Has she complained of any other pains before getting sick?
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1342
   Posted 4/22/2015 9:15 PM (GMT -6)   
My guess is that it is not lupus but something inflammatory, infection or autoimmune, is going on. It is a little odd that cpk is elevated that much in a young child. CPK is not normally elevated in lupus but is associated with other diseases that are more muscle related. Lots of possibilities.

Also, keep in mind that just because you test positive for an antibody associated with a disease does not mean you will actually get it. Most autoimmune diagnoses are made with a combination of labs, clinical symptoms and sometimes other tests. Never easy. Hope you can get the doctor quickly.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

elbieta
New Member


Date Joined Apr 2015
Total Posts : 2
   Posted 4/22/2015 10:37 PM (GMT -6)   
She has complained of knee pain, thigh pain, ankle pain, wrist pain, pain in her forearms, before coming down with the four days of fever she had at the beginning of the month. She has sat down and cried because of the pain at times. It was on and off, and random, so the pediatrician kept telling me it was just growing pains.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 4/23/2015 5:50 AM (GMT 0)   
So sorry she hurts so much.
I hope the rheumatologist can help her feel better.

The rheumatologist will use a specialized list of 11 indicators to see if it's lupus or not. She has to meet 4 out of the 11.

I hope you can get some answers quickly.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Becky20
Regular Member


Date Joined May 2014
Total Posts : 68
   Posted 4/24/2015 4:05 AM (GMT -6)   
Not a dr either but when I was looking up the difference between ssdna and dsdna, the double stranded was almost exclusive to lupus. That along with symptoms sound like indicators for lupus or similar disease. I hope you get some answers and relief for her pain quick.
Diagnosed with SLE lupus October 2014.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 4/24/2015 4:23 AM (GMT -6)   
You and your wee one are in my thoughts. I can only imagine the worry you must be experiencing right now. Sending big hugs and my hopes that you will get some answers and relief for your daughter soon. <3
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

LoolooLoopus
New Member


Date Joined Apr 2015
Total Posts : 8
   Posted 4/26/2015 5:37 PM (GMT -6)   
No matter what her diagnosis, I'm really refreshed to hear about a parent getting their kid checked out. My mom was really in denial about health issues (I think because she was terrified deep down, and a quick fix was to pretend like there was no problem.) I might have been diagnosed and helped years ago. So I'm glad that you're so proactive about your daughter's health. I wish the best for both of you and you're both in my thoughts <3
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