Welcome to our forum Nowwhat. First I also agree that you need to see a neurologist who specializes in sleep disorders- immediately. Sleep studies are very expensive, but in your case even if insurance doesn't cover all of it, you must have one.
Also if you are seeing a rheumatologist for your lupus and continue to flare, I suggest you find another rheumatologist. I have had lupus for 10 years and saw 3 rheumatologists before I felt comfortable with my treatment regiment and I may go back to a previous rheumy.
Please seek help Sweetie. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry