Lupus and Memory Loss

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New Member

Date Joined Apr 2015
Total Posts : 1
   Posted 4/30/2015 5:09 AM (GMT -6)   
I have known of my Lupus and have been in a constant flare up for 2 years and 11 months.
My sleep patterns are destroying my life and they are way too strong to fight them. I actually sleep walk and I now have Narcolepsy!!!!!!
Yesterday morning I got up, got dressed, left the house (don't know where I was going) got in my newish car and made it down the main road, not even a mile, and I side swiped everything on the passenger side of the road, I demolished the exterior of my car.
I barely, I mean barely remember any of this happening. I think that I was sleep walking. Has anyone had anything this horrific happen to them?
I am going to sell the car as is immediately and stop driving as well (to that I did much anyway).

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 4/30/2015 2:23 PM (GMT -6)   
Wow! That's scary!
my sleep pattern is messed up too, but not that much.

Are you seeing a sleep doctor? You need a sleep study done.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 4/30/2015 6:24 PM (GMT -6)   
Agree with Joy. You should definitely see a doctor. This is a very dangerous situation you describe. Even if you stop driving, there are so many other dangerous (even life threatening) things you might do. I urge you to see a sleep specialist. Good Luck!
Take care, Fran

Regular Member

Date Joined May 2014
Total Posts : 68
   Posted 4/30/2015 10:30 PM (GMT -6)   
I know a lady with lupus who recently had similar experiences. She's had a hard time sleeping, she's forgotten chunks of time, even forgotten who she's talking with, and sleepwalks. She was diagnosed with sundown dementia. I'm sorry you're going through this. I can't imagine how horrifying this must be.
Diagnosed with SLE lupus October 2014.

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 5/14/2015 8:41 AM (GMT -6)   
Welcome to our forum Nowwhat. First I also agree that you need to see a neurologist who specializes in sleep disorders- immediately. Sleep studies are very expensive, but in your case even if insurance doesn't cover all of it, you must have one.

Also if you are seeing a rheumatologist for your lupus and continue to flare, I suggest you find another rheumatologist. I have had lupus for 10 years and saw 3 rheumatologists before I felt comfortable with my treatment regiment and I may go back to a previous rheumy.

Please seek help Sweetie. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry
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