retinal lesions question.

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txcola
Regular Member


Date Joined Jul 2013
Total Posts : 194
   Posted 5/13/2015 1:09 PM (GMT -6)   
Hey all. Still on a journey, and it's been a long one. I have not been diagnosed with lupus, but fibro/PSArthritis instead. I have a great rheumy, and he's been very helpful.

So here's the deal. Once or twice a year I get what I call an eye flare. It's painful. itchy, blurry, red, headachey and the sun is impossible and it can last for weeks until it calms down. Nothing has ever helped. I've been diagnosed with optic neuritis, and then had it taken back. So all the years, it's just one of my "friends".

Recently I was given steroids for a sinus infection. It made the flare go away. What sweet relief after all these years. Once the steroid wore off, all of the pain, fatigue and eye crap came rushing back.

So I did what I always do. Years ago, a doc told Go to the eye doc immediately if this happened. So I did. Nothing is ever found, and they give me dry eye drops and send me home. I figured if nothing else, I'd get some cool new glasses.

Halfway through the eye exam, they dilated my pupils and I was cleared for all the scary stuff that runs in my family. Then he asked me if I'd ever been told I had lesions in both eyes. I've been sent to a retinal specialist for follow up.

So my question is. Do you guys have the same icky feeling and lesions? Do steroids help? Does this mean it's possible I have lupus? ( have four of the 11 symptoms and 1 positive ANA in the past)

As always, thank you very much.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/13/2015 3:56 PM (GMT -6)   
I don't have lesions in my eyes, but I do have glaucoma. I hope you get answers with the eye specialist.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Becky20
Regular Member


Date Joined May 2014
Total Posts : 68
   Posted 5/13/2015 8:48 PM (GMT -6)   
It's possible you may have lupus, but other autoimmune diseases can share similar symptoms.

I had to stop wearing contacts due to dry eyes and irritation. I have some sort of lesion on the retina in 1 eye. My optometrist noticed it 5 yrs ago. He held a thing up to my eye so I could see it for myself. I remember his words 'just a spot on the back of your eye, nothing to worry about, we'll just have to watch it'. Makes me wonder if a little more concern WAS needed. I haven't seen an eye dr since my dx. My rheumy wants me to see a ophthalmologist instead of the optometrist. I'm a severe procrastinator and a bit phobic when it comes to eye 'doctors'. But I'll try to report back if they think its lupus related.
Diagnosed with SLE lupus October 2014.

Mia
New Member


Date Joined May 2015
Total Posts : 5
   Posted 5/15/2015 1:26 PM (GMT -6)   
Hello, I have Lupus , Sjogren, Hashimoto, remathoid artritis and my eyes are super dry the specialist say that is causes by the Sjogren but the retina and the cornea can be affected by the meds. I take Plaquenil or Hydtoxichloroquine I am suppossed to go to the ophsthalmologist at least every six months.
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