Hi. I was finally diagnosed in 2007 by a hematologist oncologist with a bone marrow biopsy. It took 5 drs. & I'm not sure how many years to get a firm diagnoses. Unfortunately, after my blood was affected seriously enough to lose my immune system, & come down with Sepsis after a urinary tract infection spending 10 days in an ICU unit.
Since 2005, I've had my rectum & colon removed, a nuerostimulator put in for my bladder, stents in my pancreatic bile duct because it closed up for 3 yrs. with scar tissue several times. I also have pulmonary hypertension (including a fib), which I have been hospitalized for ( 5 wks. ago, cardiac unit). I have mixed connective tissue disorder, so I have the Sjogrens, fibro, RA & osteoarthritis, etc.
That a short synopsis of my background. Now I feel like I'm fighting for my life. Since Jan. I've been on the longest flair I ever had. In the cardiac unit, they found thru a Pulmonary Function test that the problem was my lungs. I've gone thru so many tests the last 4 wks. & I had my last one yesterday for awhile (PFT).
I'm on two inhalers, a nuebulizer, & 10 prescript
ions from everything to stopping gag reflux, muscule spasms, nerve pain, enzymes to keep my pancreas at bay (It needs another stent), and a multi-nodularm goiter on my right throid. Can anybody give me any information? I have already joined the Lupus Foundation & wore my purple Lupus shirt proudly to the Lab on the 15th!
I have a great attitude, positive spirit, blessings galore with my family & friends, I have so much to live for. But this isn't living. I've had to stop my Ostomy Support group, my gym, my church, etc. I have no energy or immune system to fight anything off.
the dump. My therapist is going to have nothing to listen to Tues! I'll just print & let her read letter. Thank you for reading! :)
Post Edited (sandybeaches) : 5/22/2015 9:55:28 AM (GMT-6)