prednisone taper after long term use

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oceanpoetry
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 6/4/2015 9:25 AM (GMT -6)   
Hi Everyone,

Was wondering if anyone has experience with being able to successfully taper off prednisone after long-term use. I have been taking 10mg a day since 2011, whenever I try to taper I get mouth sores, fatigue and "brain fog"... I have been reading about the adrenal glad getting depleted, so I hope to try again tapering, but since I have been on this for longer, feeling discouraged about being to taper.

Thanks in advance! I have looked around and haven't found any information about this particular situation.

Rhonda

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 6/4/2015 8:43 PM (GMT -6)   
You should ONLY TAPER under a DOCTORS SUPERVISION!!! Since you have been on it for a while, it will take quite a while to come off and you may need to stay on 5-10 mg forever - that is the amount the adrenals naturally produce. You need this to keep some body processes going - like your heart beating - that is why you need to come off SLOWLY and with a dr monitoring the process.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

oceanpoetry
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 6/4/2015 11:59 PM (GMT -6)   
Thanks, Lynnwood. Yes, of course, only taper under dr's supervision. I have tried numerous times over the years and been unsuccessful. Hopefully, 10 mg that the long-term effects will be minimal...I was just wondering is it even possible after this long, has anyone else had success under similiar long term use.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7720
   Posted 6/5/2015 9:40 AM (GMT -6)   
Of course it is possible, I am off prednisone after 13 years -- but it is not at all unusual to find that the adrenal glands simply don't want to "bounce back".
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

oceanpoetry
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 6/7/2015 10:53 PM (GMT -6)   
Thanks, Lynnwood! That is really great news, gives me some hope for the next time I try.
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