Update on Barbara Lee

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Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/10/2015 7:59 PM (GMT -6)   
Hello Friends,

Barbara had a chest scan today and before she was even home they called her to come back to the ER, probably to be admitted. It seems she has a blood clot that has grown over the last few months, AND there appears to be a 3 cm piece that has broken off and is in her heart.

Barbara asked that I put up this post and request positive energy and prayers from everyone - sounds like she'll be needing all the help she can get.

Unfortunately, her husband is out of town for a few days, so she's pretty much dealing with this alone.

Thanks.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/10/2015 8:41 PM (GMT -6)   
Poor Barbara, sending positive vibes her way.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/10/2015 9:14 PM (GMT -6)   
Sending them! I hope someone comes to stand by her.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2015 1:12 AM (GMT -6)   
I just came here on purpose to see any new report on my dear friend, and here it is. thanks for posting and sharing.

So sorry her troubles are increasing, and like me, we never seem to cop a break in the action.

If you speak to her, please tell her David (Purgatory) from the PC group is asking about her, and still offers her name up to prayer every day.

We both made a pact together, long ago, that despite her woes and mine that neither of us would ever give up hope. She's done an outstanding effort on her part of the deal.

As for me, things continue to worsen. Have lost nearly 110 pounds now in 14 months without trying. A tumor was found in my face (lower left cheek bone area), and the VA is doing surgery on June 23rd to remove it. The ENT surgeon is expecting it to be cancer, if so, it will be my 5th event since year 2000.

Having a full body CT done in the morning. After being without teeth for nearly 9 months, the VA should have my dentures ready for me in about 2 weeks.

Good luck Barb, I miss hearing from you. Hoping for only the best.

David

And my best to all the other members here, even though I don't know most of you personally. You have a good group of people here

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/11/2015 1:00 PM (GMT -6)   
Prayers for Barbara and many well wishes, please let her know we are all sending so many prayers and healing wishes...and that we really do care...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4497
   Posted 6/11/2015 7:35 PM (GMT -6)   
Thanks Lynn.
Keeping her in my thoughts and prayers.

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/11/2015 7:56 PM (GMT -6)   
Turns out the scan was misread, but they've kept Barbara in the hospital today anyway. Nothing like a little panic to kick off a nice Lupus flare, huh? We all hope that doesn't happen!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/11/2015 9:02 PM (GMT -6)   
glad to read this. hoping she dodged the "bullet" this time at least

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/11/2015 9:38 PM (GMT -6)   
Whew! That was a close call. Hope she's home soon.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4497
   Posted 6/12/2015 10:08 PM (GMT -6)   
Oh wow... It's a relief to hear this! Hope Barbs is okay.

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1352
   Posted 6/13/2015 8:44 AM (GMT -6)   
Geez.. glad they are keeping close eye on Barbara but that misdiagnosis was an awful 'kick in the teeth'.

Please let her know Diane says hello, best wishes & am keeping her in my prayers, as always.

And David/ Purgatory I've been checking for your updates too..
Prayers & best wishes hon.

One day at a time.
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/14/2015 7:43 AM (GMT -6)   
Well, I hope this hospital stay helps Barbara and that she has my continued prayers...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/18/2015 9:15 PM (GMT -6)   
Just checking back on Barb. Hard to get her situation off my mind. Give her my best. Hope to catch up with her soon.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/19/2015 5:31 AM (GMT -6)   
Same, checking in. Hope you're doing alright Barbara and the stress hasn't set off a flare. Thinking of you xo
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1205
   Posted 6/21/2015 11:46 AM (GMT -6)   
Barb i Love you and keeping you in my daily thoughts and prayers!

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 6/22/2015 12:42 AM (GMT -6)   
Hi Everyone:

I'm sorry that I'm not addressing each of your individually but I'm just to sick at the moment to handle much. I'd like to thank Lynnwood for starting this thread and keeping the updates together for me. Lynnwood you're always there for us and we really appreciate you more than you'll ever know.

I'm not going to post much right now. I'll put in a bigger update tomorrow, I've been in a major flare up and my breathing has become a major nightmare. My foot and periformsis muscle is a fine mess. Pain 24/7 no matter what I do for it.

Been walking on egg shells here at home and feel that if my body holds on long enough, I'm gonna have a nervous breakdown anyway. Things just aren't the same now with my daughter since she's gone away to college and lived on her own. It's just upsetting that I feel we're at each other all the time. On top of all of that I've managed to misplace my cell phone and wouldn't you know, it's turned off. So, I can't hear it ring at all. I know for sure I had it in my hot little hand on Saturday night.

Please send me more positive energy, thoughts, love and prayers. I need my cell phone, I need my pain to lessen, and I NEED to feel some better. I know a lot of you folks are not doing the best and I assure you I'm reading the posts here and you're all in my prayers. I'll post more after I've had some sleep tonight. I hope you all are sleeping and have a good day today.

Hugs,
Barbara
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/22/2015 2:07 AM (GMT -6)   
((((((((Gentle hugs ))))))))))

Glad to hear from you, but sorry to hear you're having so much trouble. I hope you can find your phone soon. Try to think where you were and what you were doing at the time. When I loose something it usually is found down in a seat cushion or laying under a pile of papers.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 6/22/2015 9:08 AM (GMT -6)   
Continued prayers for you Barbara...Hope you and your daughter can get things worked out, maybe ask her to come and go to a movie sometime...when your up to it...or have a rent movie weekend at home...
Prayers...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Butterflake
Veteran Member


Date Joined Jun 2006
Total Posts : 1650
   Posted 6/22/2015 6:49 PM (GMT -6)   
Hi Barbara. I'm keeping you in my prayers and sending all the positive energy I can muster. My daughter just turned 30 and she's been distant off and on for several months. I'm too sick to help her in any way and I think she resents it. Oh well, I never understood my Mom, nor did I want to understand her way of thinking. Hopefully your daughter will cycle thru a "nice mood" soon. I love you Sweetie and really hope you get some pain relief soon. Pain makes everyone exhausted. Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/23/2015 10:40 AM (GMT -6)   
Hi Barbara,

I hope this finds you with cellphone in hand and with pain lessened.

I'm sure it's hard on everyone to have a college-graduate adult daughter living at home, I hope you have all come to a peaceful place by now. Everyone is probably trying to fit into the old behaviors and the old relationships, but everything is different now so that stuff won't work. Always difficult to forge new paths!

Best always,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1352
   Posted 6/23/2015 9:16 PM (GMT -6)   
Prayers.. as always hon.
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1526
   Posted 6/24/2015 1:57 AM (GMT -6)   
Prayers for you Barbara ,I hope you feel better soon!
Hugs ,Take care
Cilly~
MDD,Anxiety Disorder,Panic Disorder,Lupus,Fibromyalgia and so much .......

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4497
   Posted 6/24/2015 7:41 AM (GMT -6)   
Hi Barbs,

By chance, is it a Iphone or Samsung? If it is and it's registered with Apple or Samsung, there's a find my phone site onlie that you can use to track the location or last location of the phone.
I hope you will find it soon.

Keeping you in my prayers and thoughts.

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/24/2015 8:21 AM (GMT -6)   
LOL. I don't think find my phone will tell Barbara if it's in the sofa or under the bed or in the clothes hamper!!!

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4497
   Posted 6/24/2015 10:25 AM (GMT -6)   
Oh Lynn, you're sooooo right!

I'm going coo coo. confused Lol *Shame*
It will just tell her what area it's in which she already knows.
smhair

Sorry Barbs...

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.
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