Update on Barbara Lee

Barbara found the phone, but has managed to break a few more ribs. In addition, her new PCP isn't being as responsive as she is used to about refilling prescriptions, and tensions are still high with re-integrating her daughter into her home. Prayers for health & peace!

So glad Barbara found her phone, now sending many, many prayers and healing wishes!
I hope Barbara can work with her daughter to get through these issues, it will take work.
Many prayers...

Continued prayers for Barbara...

Thanks for update..
Been checking for it..

So sorry about fall & complications from treeatment.

Gentle hugs hon

So sorry about the fall and sending more prayers....

Hi Barbara. I'm sorry I don't keep up with you, but I'm battling severe memory and cognitive issues and simply forget. It's really good to hear from you and I'm so very sorry that you can't catch a break.

I'm also sorry you didn't get your IVIG. I've been taking it for over a year and it's been a God send. My IgG and all its' subclasses were below normal. The first few months I was ugly sick for days after getting the infusion. Now I'm only sick for the day of and day after. The great thing for me about IVIG is that I haven't been hospitalized since getting the infusions. Not once. I'm also getting Benlysta infusions monthly that deplete my immune system, but still no in-patient stays. I sincerely hope that eventually you will get some benefit from your IVIG.

Seeing your post reminds me to keep you in my prayers. I'm sending you all the positive energy I can muster Sweetie. Love You, Donna

((((((Gentle hugs)))))))

I feel so sorry for how things are going for you right now.
A few years ago I got a lawyer who wrote my will and a power of attorney for me very cheap.

I hope the doctor's visit was good.

Dearest Barbara,

I had a heck of a time finding this post leading to an update of your status, but I did and I'm here now.

I hear the frustration in your writing, Barbara. I know you are sick and tired of it all, but please know that your posts inspire me every time I read about you. You are my hero. I have never known anyone who has gone through a more difficult physical life than you have and you truly inspire me, Barbara. I am praying tonight to the Blessed Mother and to her Son, to hear my pleas to release you from such serious pain and lesson your struggles. The result will be that of the Father, the Son and the Holy spirit, but that is what I am praying for. I wanted you to know that I hear you. and that I am praying for you.

I don't know if you are talking on the phone now, but I will try to call you tomorrow and if you feel up to it, we will chat. If not, then that is ok with me. Whatever you are up to is ok with me.

I love you dear Barbara and I hope you get this post soon, so you can get a hold of my intentions especially about the phone call.

Take care and God bless.

Love,

Linda

Oh, Barbara,

So sorry to hear you've had an adverse reaction to the IVIG this time. I hope your pain is something simple, like stress, and that you'll be released without incident soon!

Hugs,
Lynn

Prayers continue..

Bummer place to be but sounds like it is where you need to be..
Remember -
you have access to room service 24/7.
Housekeeping
Help getting up, etc whenever you ask.

If their food/snacks are not to your liking ask the nurses, etc help in getting what you have a hankering for - OK?

Hugs

Good morning everyone:

Sorry it's taken me all week to update you. A week ago I was sitting in a hospital room, this morning I'm sitting in my bedroom writing to you.

I was discharged last week from the hospital and really don't know what my status is as far as the IVIG goes. My Rheumy was out of town on vacation when I got sick last week. So, I'm not sure if I'll continue on with the IVIG.

I do see my PCM today and she use to be a Rheumy and had mentioned IVIG to me the first time I saw her. Hoping that she'll be able to get me an answer as to whats going to happen on that front.

I have to say every since the reaction I feel so bad, I'm fatigued, and have tons of joint pain and swelling din all my joints. My pelvis fracture just doesn't want to heal, been told it may NEVER heal. My foot is hurting me so badly I just want it off my leg. Of course, I know my surgeon will not do that. The ribs are still fractured and hurting. I just wish that all of these issues were spread between both sides of my body, instead of all being on my left side.

Because of everything being on my left side I'm much weaker and I stumble a lot, been using my walker and am still stumbling. My cut on my right shin is open, and wouldn't it be LOL. this darn prednisone is just tearing me apart, it's such a double edged sword. It makes me feel better but its making my body fall apart.

After seeing my PCM, I'm doing a six minutes walk to review my oxygen requirements and then I'll see the wound nurse to remove my dressing on my leg. Of course, my luck is never with me and last night while brushing y teeth a crown came out and so I need to see the dentist. I got it in with some temporary stuff but I'll need to see him ASAP.

Well, that's the news here I from here, I'll let you know what they decided about the IVIG when I know more. Please take care of yourselves, and Donna I'm glad to hear that the IVIG and Benlysta is working for you. YOU, certainly deserve a huge break. I will see the vascular surgeon on Wednesday and the radiation oncologist on Thursday. Plus I'll have two days of PT this week. Full week for me so, I'll post when I can, I'm way to anemic this week and need a couple of units of blood. Will be asking for that today, I'm like a vampire I just should keep a fridge full of blood.

Well I need to go, I hope you all have a very good day and VERY LOW PAIN levels. Take care and will post soon.

Hugs,
Barbara

Thank you for the update Barbara, so glad to know your at home. Will keep you in my prayers and will stay positive for you, you will heal and be on the mend!
Prayers and blessings...

Thnx for the update Barbara..
You sure do have a full, busy week..

Keeping you in my prayers hon.