Good morning everyone:
Sorry it's taken me all week to update you. A week ago I was sitting in a hospital room, this morning I'm sitting in my bedroom writing to you.
I was discharged last week from the hospital and really don't know what my status is as far as the IVIG goes. My Rheumy was out of town on vacation when I got sick last week. So, I'm not sure if I'll continue on with the IVIG.
I do see my PCM today and she use to be a Rheumy and had mentioned IVIG to me the first time I saw her. Hoping that she'll be able to get me an answer as to whats going to happen on that front.
I have to say every since the reaction I feel so bad, I'm fatigued, and have tons of joint pain and swelling din all my joints. My pelvis fracture just doesn't want to heal, been told it may NEVER
heal. My foot is hurting me so badly I just want it off my leg. Of course, I know my surgeon will not do that. The ribs are still fractured and hurting. I just wish that all of these issues were spread between both sides of my body, instead of all being on my left side.
Because of everything being on my left side I'm much weaker and I stumble a lot, been using my walker and am still stumbling. My cut on my right shin is
open, and wouldn't it be LOL.
this darn prednisone is just tearing me apart, it's such a double edged sword. It makes me feel better but its making my body fall apart.
After seeing my PCM, I'm doing a six minutes walk to review my oxygen requirements and then I'll see the wound nurse to remove my dressing on my leg. Of course, my luck is never with me and last night while brushing y teeth a crown came out and so I need to see the dentist. I got it in with some temporary stuff but I'll need to see him ASAP.
Well, that's the news here I from here, I'll let you know what they decided about
the IVIG when I know more. Please take care of yourselves, and Donna I'm glad to hear that the IVIG and Benlysta is working for you. YOU, certainly deserve a huge break. I will see the vascular surgeon on Wednesday and the radiation oncologist on Thursday. Plus I'll have two days of PT this week. Full week for me so, I'll post when I can, I'm way to anemic this week and need a couple of units of blood. Will be asking for that today, I'm like a vampire I just should keep a fridge full of blood.
Well I need to go, I hope you all have a very good day and VERY LOW PAIN levels. Take care and will post soon.
DX- RA, Lupus, Fibro, LGL Leukemia, Obstructive & Central Sleep Apnea, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.