Haven't posted in long time have a question

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Regular Member

Date Joined Mar 2005
Total Posts : 140
   Posted 6/13/2015 12:08 PM (GMT -6)   
Hi everyone,
I haven't posted in very long time. I've thought of you all often but have had so much go on in my life. As some might remember I have SLE. In 2010 I was also diagnosed with CVID which requires weekly gamma globulin infusions.
about 2 years ago I found out I have seizure disorder I guess from lupus I know it's left frontal temporal lobe seizures so I'm always aware what's going on. I can't tell you how many stents have been put in my pancreas and removed due to chronic pancreatitis.
I'm on a weekly MTX injection for lupus.
I have wierd itchy rash on my right elbow and part of arm and also both knees is this from lupus? It's very itchy and often seems to get worse if I get hot or in sun. I try to avoid sun period but hard to do if riding in car.
I hope someone can help here. Also I had quit doing folic acid with the MTX. Is it really needed?
Hope all of you are doing well I can't count how many times I have felt like giving up..
Wish you all the best!!

Post Edited (JustChattin) : 6/13/2015 6:43:08 PM (GMT-6)

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/13/2015 9:22 PM (GMT -6)   
I'm sun sensitive and have to wear SPF clothing.
I understand that folic acid helps with the side effect of mtx. I can't take mtx. I take Leflunomide instead.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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