If not lupus....then what?

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New Member

Date Joined Jun 2015
Total Posts : 4
   Posted 6/15/2015 7:36 AM (GMT -6)   
HELP! HELP! HELP! Somebody please......Ok here is my situation. I have EVERY symptom of Lupus but because it does not show up in my blood they say I do not have it. I just need help! The flare ups usually happen around my menstrual cycle and everytime I was. I was pregnant 6 times since the age of 19 and I am now 40. My first child is the only one that survived. During my 3rd pregnancy a big purple rash appeared across my right foot. But when I lost the baby it went away. My hair is constantly falling out. I have a bumpy rash across the back of my neck. My arthritis is extremely painful during flare ups.I have GI problems. I have had every test imaginable. I have seen at least 4 different primary physicians and loads of specialists and still am. My primary physician now says it is all in my head and that "the brain can do amazing things". I think she is NUTS! CAN SOMEONE PLEASE EXPLAIN TO ME WHAT IS GOING ON! ANYONE PLEASE.......I need answers. Thank you

Forum Moderator

Date Joined May 2005
Total Posts : 7673
   Posted 6/15/2015 9:25 AM (GMT -6)   
Lupus shares symptoms with a large number of other auto-immune diseases. Unfortunately, Lupus cannot be ruled IN, nor can it be ruled OUT, with a single test, like a blood test.

Lupus and other auto-immune diseases are diagnosed and treated by a rheumatologist. Diagnosis is based on the presence of at least 4 of 11 symptoms. Check out the link Diagnosing Lupus below and if you are still concerned that Lupus might be a problem, visit a rheumatologist for an evaluation.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Regular Member

Date Joined Feb 2013
Total Posts : 50
   Posted 6/15/2015 3:35 PM (GMT -6)   
Lynnwood is correct. Have you seen a rheumatologist?

Post Edited (Tinkerbee) : 6/16/2015 5:21:59 AM (GMT-6)

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