tingling and slight numbness

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calliope65
Regular Member


Date Joined Jul 2012
Total Posts : 43
   Posted 6/17/2015 7:19 PM (GMT -6)   
Hello all! I was diagnosed with uctd a couple years ago and, thankfully, it seems to be staying simply uctd. But, that being said, I do experience symptoms that I am not sure are related to it or to something else. I have no idea if I should be discussing these symptoms with my docs or just deal with them. I am so exhausted so easily. But the newest complaint is what is bothering me the most. My hands, my feet, sometimes my legs, even parts of my torso tingle. I have part of my left thumb that almost feels numb. I also have raynauds but have only really experienced on finger turning white once--usually my feet are mottled or have white spots. Is this tingling something I need to speak with my rheumy about or my primary or just tough it out? It has been going on for about a week and a half, sometimes minimal, other times drives me crazy!
I welcome any suggestions :-)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 6/17/2015 9:06 PM (GMT -6)   
Always discuss new symptoms with your Drs. In this case I would talk to your rheumy, esp. if it lasts more than 2-3 weeks.

Sometimes tingling can mean some kind of neuropathy -- and sometimes if it remains untreated too long it becomes permanent. Now this probably is NOT what you have going on, but always better to be safe than sorry.

When I had tingling it generally meant I had some inflammation happening, and depending on how much inflammation showed up in my blood they would take different courses of action.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 6/17/2015 9:21:14 PM (GMT-6)


calliope65
Regular Member


Date Joined Jul 2012
Total Posts : 43
   Posted 6/18/2015 5:33 AM (GMT -6)   
Sometimes I feel like a hypochondriac but I definitely know when something is not right with my body. Thank you for your input, I will try to contact my rheumy today and see what they suggest. 😊

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 360
   Posted 6/19/2015 4:37 AM (GMT -6)   
Yeah the exhaustion you expressed mixed with the tingling signals to me also that something may be amiss. I find that the plaquenil helps me quite a bit with my day to day fatigue so when I get that "walking through peanut butter" feeling it usually tells me that my body is working too hard and fighting inflammation somewhere. Good luck, let us know how it goes :)
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

calliope65
Regular Member


Date Joined Jul 2012
Total Posts : 43
   Posted 6/19/2015 5:50 AM (GMT -6)   
Thank you so much! I haven't been started on any meds yet but if it helps with the issues i'm having, I am for it!

calliope65
Regular Member


Date Joined Jul 2012
Total Posts : 43
   Posted 7/3/2015 1:01 PM (GMT -6)   
Well I was able to contact my rheumy and he suggested starting me on neurotin-he thought it could be neuropathy. I took my first pill last night and it seems like I don't have as much numbness but I am going to see how I feel after a week on it and let them know if it isn't working. He also ordered a cbc for the petichiae(?)that I acquired all over my shins. I hadn't had so many in quite a while and he thought maybe my platelets were low again. Turns out that the platelets actually went up but the spots kept appearing on my thighs and on my upper arms. Could the platelets have gone down and then rebounded before I got the bloodwork done? It was at least a week from the time I noticed them until I got the cbc done. So many questions--maybe I should make an appointment?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/3/2015 9:26 PM (GMT -6)   
I used to keep peticutia on my shins when I was working. My platelets were always normal. I do have spider veins and mild varicose veins.

Do you deal with those?
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

calliope65
Regular Member


Date Joined Jul 2012
Total Posts : 43
   Posted 7/4/2015 6:00 AM (GMT -6)   
I don't think I have spider veins or varicose veins, Joy. I had thought that maybe it was from the sun but I had been in the sun quite frequently for the prior two weeks and didn't see any spots. Could it be part of a flare?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/4/2015 9:09 PM (GMT -6)   
Maybe....
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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