New to the whole "Lupus" thing.

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New Member

Date Joined Jun 2015
Total Posts : 1
   Posted 6/24/2015 2:47 PM (GMT -6)   
I have been having some skin problems since November of 2014. I have been treated for Folliculitis, Psorasis and shingles without any tests being done. It started on my scalp at my hairline.... bumps that were very sore and got bigger and eventually peeled (so to speak). After 6 months I had a place to come up on my chest. It was several bumps/sores that formed a circle. They were very sore and tender and dry. This is when I was told I had shingles. After hearing people talk about their experience with shingles I knew right away that it wasn't shingles.... didn't feel as bad as they say it does. Finally decided to go to another dermatologist for another opinion. She did not want to treat anything until she knew what we were dealing with. She drew basic labwork and the results are listed (only the ones that are abnormal)
Platelets: 143,000 (had low platelets when pregnant with my children both times ages 17 and 12 now) Easy to bruise all of the time.
ANA: Positive
She told me with the positive ANA she wanted a biopsy. I was instructed to get out in the sun and try to trigger another reaction so she could biopsy. Sure enough I was in the sun on Saturday and by Tuesday I had a good rash for her to biopsy. She took 2 samples and said she suspected discoid lupus. The biopsy results stated: Findings are consistent with an early lesion of the clinically suspected cutaneous lupus erythematosus, but could also be seen in other connective tissue diseases and in some medication associated eruptions. Both samples said the same thing.
Now she has referred me to a Rheumatologist..... However they do not have an opening until August. Has anyone else had any experience with this type of testing. What can I be doing until my apptointment in August. Just really stressed and don't know what to think. Thanks so much for reading and responding...... Sorry it is so long.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/24/2015 4:31 PM (GMT -6)   
Try not to fret while you wait for the rheumatologist appointment. He will do further testing and ask a lot of questions, before confirming or denying the dermatologist's diagnosis.

Meanwhile avoid the sun as much as possible. If you must get out, wear sunscreen and sun protective clothing.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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