I actually saw your question posted in the Lupus forum as I was getting ready to click on the Lyme forum. I have Lyme, have had it for 30 years although I only finally got a diagnosis in fall of 2014. I have had most of your symptoms at one point or another, as well as multitudes of misdiagnoses. The top 5 misdiagnoses for someone who really has Lyme (and I've had many of these only to learn that I actually don't) are: Chronic Fatigue, Fibromyalgia, Lupus, Chronic Migraine, a Mental Health issue, and MS.
I am in no way suggesting you don't have Lupus! I just wanted to echo what member Rajaenchen said above: it's really good to try to eliminate every other possibility before embracing your diagnosis. As Lynnwood suggested, Doctors are still learning about
these mysterious diseases too. There really are many autoimmune diseases that look just like lyme, or lupus. It's important they learn about
every single one of your symptoms to help them make a diagnosis. Blood tests can't always tell the whole story, although they can help.
You may want to ask for a Lyme test as well at your appointment, if you haven't already. (But they are notorious for coming back as a false negative: as many as 50-60% of all Lyme tests that should show a positive come back negative because of their poor design.) The only trustworthy labs are Stonybrook and IGeneX, in my own long- and drawn-out experience. I got many many negative tests from other junky but well-reputed labs until the two above finally got it right. You can learn lots about
that in the "New to Lyme" thread at the top of the Lyme forum.
On a separate note: please know that you are NOT a hypochondriac! This is a word that most of us with chronic illnesses have heard our whole lives/entire illness--from doctors, family members, friends. You KNOW your body and you know something is not right. Don't worry about
being too pushy with doctors! It is YOUR life and YOUR health, you are right to question and challenge until you get answers. And most of us on all of these boards understand & welcome 'whining'--this is a hard road to travel. This is what most of us have had to learn the hard way.... I hope all goes well at your next appointment, that you get clear answers, and that you can start your road to healing!
1984? Grade school bite in HI
1984-2014: Headaches/frequent flu/insomnia/bad memory/dizziness/allergies/nausea/joint, foot pain/vertigo/teeth decay"from inside"/extreme fatigue/heart palpitations/depersonalization/heat,light,noise sensitivity
8.14: Add weak, heavy legs/dyslexia
10.14: CDC IgM: 23+ 41+
11.14: IGX IgM: 23+ 39+ 41++ 58+ 83/93+ 31IND IgG: 41+ 58++ 31IND
Post Edited (mauihawaii) : 6/27/2015 5:56:28 PM (GMT-6)