What does it all mean?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 8/1/2015 4:58 PM (GMT -6)   
Had recent bloodwork to test for autoimmune disease because of sudden unexplained joint pain and I mentioned to my Dr. about psoriasis-like symptoms of many years. My ANA came back abnormal. It looks like this: ANA positive (abnormal) reference range negative. ANA ttr 1:64, ANA pattern speckled. I have to see a Rheumatologist and I am waiting for a call for an appointment. In the meantime any searches I do with these results the first thing that comes up is Lupus. Not sure what to think and I realize that I need to get to the Rhemy......

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/1/2015 10:42 PM (GMT -6)   
Be patient as you wait to see the rheumatologist. There will be more testing while he determines what's happening.

I hope you find answers soon.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 8/2/2015 6:40 AM (GMT -6)   
The Rheumatologists office said to have my Dr. send all notes from visits, x rays, dexa scans, blood tests and and any results and then they will call me to schedule an appointment. I'm hoping I will get a call this week. It has been a week since I asked my Dr. to do that. I wonder if it's reasonable to think that I should hear from them this week..? Does it usually take a long time to get into see a Rheumatologist?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/2/2015 3:34 PM (GMT -6)   
It took me 3 months to see my first rheumatologist, my second one 6 months.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 8/3/2015 4:28 PM (GMT -6)   
Well I did not hear anything back today from the Rheumatologist. I live in the Tampa Bay Area, FL. I don't really know what to expect as far as what is a reasonable time to get in for my initial visit. I am left to ponder my blood results and research online, lol. Every time I do a search with my results, Lupus comes up first and foremost. I should probably stop! Although it does seem I have something going on autoimmune- wise I think it could be psoriatic arthritis because I have had psoriasis like rashes on my face and scalp since I was a teen and at times photosensitivity in those areas.

I don't know if it would be bad if I call the office and see where they're at in scheduling me or just try to wait patiently.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 8/3/2015 4:38 PM (GMT -6)   
Well, I've never heard of a Dr calling me for an appointment, I've always had to call them! So I certainly wouldn't be waiting around. It can't hurt to call, right?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 8/3/2015 4:46 PM (GMT -6)   
I know Lynnwood, right?! LOL But they told me to have my Dr. fax the info and then they would call me to make the appointment. You're right, I've never heard such a thing! I will call them tomorrow!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/3/2015 9:29 PM (GMT -6)   
I called my rheumatologist to see if they received my records. They hadn't so I got back to my referring doctor and put the fire under him.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 8/4/2015 3:11 PM (GMT -6)   
Well I called today and I'm glad I did because they did have my info but they hadn't called me yet. So my appointment is September 24th. I sure wish it were sooner because it just gives me more time to worry and do all of my internet searching. I really am not letting it bother me too much but when I read "1:64 is considered very high and tissue damage is imminent" it worries me because one of the reasons I even had the testing done is a joint/knuckle suddenly became very painful and although it has been a couple of weeks and it has gotten a lot better, it still hurts and I still don't have the flexibility I had before.

I usually don't wish for time to pass but the sooner Sept 24th gets here, the better! :)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/4/2015 6:10 PM (GMT -6)   
Try not to fret while you wait for the visit. You're not going to get an answer on day one. He will need to do further investigation before naming it.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 8/4/2015 7:29 PM (GMT -6)   
1:62 is NOT "very high" and the ANA titer DOES NOT reflect any level of disease activity anyway. High would be something like 1:640 or 1:1280. But like I said, that doesn't really mean anything as it has nothing to do with the level of disease activity. I don't know where you read that about tissue damage being eminent but it doesn't make any sense.

Do you have any treatments from the primary care Dr while you wait for the rheumy? If not, you may want to try an anti-inflammatory diet (basically low sugar, low carbs) or taking ibuprofen - either will reduce inflammation which is probably what is making your joints hurt.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 8/4/2015 8:27 PM (GMT -6)   
Yes, mine is 1:640. I'm glad to hear that it doesn't make sense about tissue damage because I have read that on more than one website.

I will continue ibuprofen, it does help a lot and I'll try the anti inflammatory diet you suggested. Thank you Lynnwood!

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 9/15/2015 4:50 PM (GMT -6)   
Finally my appointment is next week early in the morning on Thursday. My appointment time is 7:30am and I start work at 8:30. I just realized that I should let work know that I may be late because I really do not know what to expect on my first appointment. Does anyone know what happens and how long will the first appointment be? I have a list of things to tell the doctor about that I have been experiencing for many years and I have recent things to add. I think I will have to go for more bloodwork. Is it possible that the bloodwork will be drawn at that appointment?

Any other pointers or information about the first appointment will be helpful for me!

Thanks! :)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/15/2015 7:12 PM (GMT -6)   
Check out the Lupus 101 thread -- it has suggestions for the first appointment that were gathered by a number of members.

Things off the top of my head
1) Don't wear a lot of makeup, you want them to see your natural appearance - including fingernails. (Not all Drs will look, but the good ones will!)
2) Symptom list, even for stuff that has come/gone mysteriously in the last year or so.
3) Med list, if you take anything for anything, or vitamin/supplement list - include anything natural you may be taking.
4) Any questions you already have, written down.

Some Drs take blood in the office, some send you elsewhere for bloodwork.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

LMD023
Regular Member


Date Joined Aug 2015
Total Posts : 24
   Posted 9/15/2015 8:08 PM (GMT -6)   
I had my initial appointment last week and it was about an hour long. rheumatologist asked went through all symptoms and spent plenty of time entering what I said in her computer....and sent me to take blood same day.
She scheduled me for a follow up 10 days later.

joe'sprincess
Regular Member


Date Joined Aug 2015
Total Posts : 33
   Posted 9/15/2015 8:10 PM (GMT -6)   
Thank you for that, it is a huge help! :) You got a quick follow up appointment!
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 2:54 PM (GMT -6)
There are a total of 2,974,771 posts in 326,206 threads.
View Active Threads


Who's Online
This forum has 161301 registered members. Please welcome our newest member, Joyful_in_Hope.
369 Guest(s), 8 Registered Member(s) are currently online.  Details
Jianqing Wu, Balladeer, Kent M., Girlie, johncl, OriolCarol, Aerose91, BOB 46